Tag Archives: chronic fatigue

Encouragement for living with Chronic Illness

16 Jun

Hello friends! I’m going to share with you some posts on dealing with chronic pain over the next little while – I’ve got quite a few saved so I’m going to split them up and we’ll see how many posts we end up with.

chrnicpainseries1

How to talk about your chronic illness from Kate the (Almost) Great

Loving someone with chronic pain  from Kate the (Almost) Great

Financial Tips and Resources for Lyme Disease Patients from Caravan Sonnet

Lyme Madness  from lymedisease.org

The Herx Reaction from Tired of Lyme

I feel like this post shows the chaotic state that chronic pain puts you in – puts your mind in. I was going to organize the posts by ‘topic’ but then just looked through them and they are all over the place. All well. The goal was to share them and hopefully encourage and enlighten those of you suffering, and those of you suffering along-side.

~Laura

Do you have a favorite post to share? Or something that has helped you in your chronic illness journey?

Health Update for May 2017

26 May

Happy end-of-May dear readers! I’m typing this out on my back porch with Lady laying just inside the open door and Abby running back and forth between me and the bone in the yard and OH in the living room. It’s a good evening so far.

fightinglymemigraines

 

Migraine app notes: I had 10 attack days lasting average of 68 hours. I had 2 attack free days. I took 56 clonidine ( 4 more than last month) They happened 50% of the time from 12 pm to 6 pm. Average pain is 7.5, which is pretty good. Supposedly I’m sleeping around 8 hours a night, migraine or not. ha. If only. Top 3 aura/prodrome are muscle stiffness, fatigue/achiness and weakness. Top 3 triggers are neck pain, too much activity and lack of sleep.Top 3 symptoms are neck pain, jaw pain and aches. Frequent start positions are the same, temples, jaw, eyes, base of skull. Soaking my feet has helped a lot this month

Overall Health/Treatment: Up until this past weekend the neurological pain (aka Fibromyalgia) and all was terrible and I was pretty much on the couch. I had some bursts of energy  but not until recently  did it ease enough that I felt like getting up and doing something. I struggled with anxiety/guilt a lot as well. Focused on adding in/increasing supplements to support this poor body.  The evenings are the worst, no matter what I try. I’ve been going to bed in a lot of fibro pain and migraine, just praying I’ll be able to sleep.

notes: 4-28-Migraine was worse today. Aches eased until evening- went to dog park and made dinner then they increased in my calves bad. Barely able to keep migraine down today. Nice to have some energy and the brain fog lifted but the pain’s wearing me down. Have had some muscle twitches today

4-30- today has left me bone- weary. Even the movement of my tongue hurts my jaw. The all-over aches have eased a little, but the cramps are little shivers that regularly run through the base of my feet. Bad migraine today. Wasn’t aware of what was going on around me for a while. Nap helped but body is SCREWED up. Tomorrow is going to be a day of loving on it. 

What do you find hard to tell people about your health? 

 

Health Update – March 2017

29 Mar

 

What a month! Spring is starting to show up here and we are so very ready for it. I’m dreaming of a small container garden and getting the landlord here to spruce up this yard of ours (he’s also a landscaper.) This time last year I had roses on my bush, it’s definitely a delayed spring!

Well, on to the topic of fighting this Lyme disease.

fightinglymemigraines

Migraine app notes – I’ve had 7 attacks, lasting in average of 72 hours. So, while they’ve absolutely been lasting longer, I’ve had 6 attack-free days. Which I believe is a record! I’ve been getting an average of 7 hrs of sleep each night – this doesn’t typically account for the getting up a few times and tossing and turning. I’ve taken 38 Clonidine. They happen 80% of the time between 12pm and 12am (ha! so helpful,that). Average level is 7.9. Top three auras/prodrome are fatigue/achiness, headache and weakness. Top three triggers are neck pain, interrupted sleep and lack of sleep. Top three symptoms are jaw pain, neck pain and throbbing pain. Frequent start positions are the same as usual, temples, eyes, jaw and base of neck.

( Comparing to last month, I added one attack-free day and the pain increased slightly while the duration rocketed up.)

Overall Health/ Treatment: Some days I feel like I’m starting to do better – and then the little evil bugs laugh and do a stealth attack. I’ve had a few symptoms ease/disappear which is wonderful. I’m going to keep my notes from this month instead of re-typing them. =)

3/18 note  – started taking iron again today – at 5 ml 2x a day to get used to it. am continuing taking antibiotic (doxycycline) for another 2-4 weeks to see if it helps or not. started a probiotic ( sacro-b) what with taking the antibiotic longer.  went off of: garlic, ehb, epo. Finishing my bottle of Silver, then going off it too. dr suggested i start having bone broth. she also wants me to do a metal toxicity test, i’ll do it after i get back from bend next week. since we aren’t making any headway with what we’ve been trying, she wants to go a different track. Dr also wants me to start taking butterbur. need to start taking the xiao chai hu tang again.  –pain has been awful these past two weeks, plus i got sick and then started my cycle a few days after getting over the cold. migraines hit hard in evening and sometimes i wake up with them in am. have lost 1.6 lbs last two weeks.

3-24 – started back up on doxycycline on the 20th. As well as the sacro-b. Upped my iron to 15ml a day on the 22nd. Taking phosphorus 1-2x a day. Needing melatonin to sleep still. Pain is definitely worse in evenings. Still daily migraines, tmj and calf/feet tenseness and a bit of cramping. Migraine seems to ease a bit more quickly the past few days. Skin is clearing up again, hopeful it’s the antibiotics and it’ll stay clear. Able to focus again, have even been writing.

3-29- ceanothus – trying 3 drops am, 2 drops aft, 1 drop  eve to see if it helps with the evening migraine and fatigue. have gained back the weight I’d lost.

Migraines: They have increased in intensity without hitting 10 at all, I don’t think! that’s cause for celebration, folks. This past week-ish they seem to respond to treatments a bit better. The rest of the month, they were resistant to everything.

Digestion/TMJ: Once again, my digestion is off. Looking forward to stocking the house with healthy options and see if I can get it to calm down again. TMJ… I’ve been clenching/grinding so much lately that my teeth hurt most of the time. The jaw pain is normal now. Finally rescheduled my appointment with the ‘jaw doctor’ as I’ve labeled her, since I had to cancel my last  appt when I was sick. (anyone else find that statement ironic, ‘when I was sick’?)

Sleep: I’ve been needing Theanine or Melatonin to get to – and stay – asleep. It’s frustrating since I was able to get off of it for a while. BUT! The night sweats have gone away.

Memory/Brain Fog: Brain fuzziness (a step down from fog??) reappeared while I was in Bend. Over-stimulation perhaps? It was strongest on my birthday, sadly. Gives one the sense of not being present. I’m hoping this eases soon.

Vision: My eyes still frequently get blurry, or just take a bit longer to focus than they should. It hasn’t progressed though.

Feet/Leg cramps: The cramps are random and maybe once a week now. Typically it’s just tenseness – which can be distracting and painful on their own. Sometimes soaking them in epsom salt helps.

Dizziness: This got worse recently, but I haven’t been watching my salt intake.

Joint Pain: This has mostly shifted to my knees/ankles. I’m so thankful that it has left my fingers – that was the worst for me.

Fatigue: This is still a struggle. Like I said above, I’m gonna try taking 1 drop of Ceanothus  to see if it helps.

~I have started following some fellow lyme disease sufferers/warriors on Instagram and in talking with one of them the other day, I learned that ‘they’ have recently learned that you can get Lyme, not just from ticks, but from other nasties like mosquitos, fleas and spiders. SPIDERS, people. I’ve been thinking back on my symptoms lately and kept getting stuck on the timeline of when I was in Culinary school and got a rather awful spider bite on my cheekbone. It swelled up so bad that it impaired my vision. Now, I grew up in an older house and got bit all the time so I didn’t think anything of it. But now…. It doesn’t really help much, other than to mentally be able to put more of a year on it. By then, I’d had migraines for a few years but after that… everything started to crash. Literally.

That’s all for today folks, I’m gonna rest and then – hopefully – get out to go grocery shopping!

Happy Wednesday,

Laura

 

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