Tag Archives: natural treatment for lyme

Health Update – April 2017

28 Apr
 It’s been a very rough month, full of reasons that I have to move, even when I’m working with no spoons. Ugh. As important as I know doctor appointments are, I admit to wishing many times that I could just stay home on my couch.
I wrote a post on pain keeping you up at night a few weeks ago, go check it out! If you want to follow me on instagram –  I do regular updates on how I’m doing and share lots of happy puppy pictures.

Health Update – March 2017

29 Mar

 

What a month! Spring is starting to show up here and we are so very ready for it. I’m dreaming of a small container garden and getting the landlord here to spruce up this yard of ours (he’s also a landscaper.) This time last year I had roses on my bush, it’s definitely a delayed spring!

Well, on to the topic of fighting this Lyme disease.

fightinglymemigraines

Migraine app notes – I’ve had 7 attacks, lasting in average of 72 hours. So, while they’ve absolutely been lasting longer, I’ve had 6 attack-free days. Which I believe is a record! I’ve been getting an average of 7 hrs of sleep each night – this doesn’t typically account for the getting up a few times and tossing and turning. I’ve taken 38 Clonidine. They happen 80% of the time between 12pm and 12am (ha! so helpful,that). Average level is 7.9. Top three auras/prodrome are fatigue/achiness, headache and weakness. Top three triggers are neck pain, interrupted sleep and lack of sleep. Top three symptoms are jaw pain, neck pain and throbbing pain. Frequent start positions are the same as usual, temples, eyes, jaw and base of neck.

( Comparing to last month, I added one attack-free day and the pain increased slightly while the duration rocketed up.)

Overall Health/ Treatment: Some days I feel like I’m starting to do better – and then the little evil bugs laugh and do a stealth attack. I’ve had a few symptoms ease/disappear which is wonderful. I’m going to keep my notes from this month instead of re-typing them. =)

3/18 note  – started taking iron again today – at 5 ml 2x a day to get used to it. am continuing taking antibiotic (doxycycline) for another 2-4 weeks to see if it helps or not. started a probiotic ( sacro-b) what with taking the antibiotic longer.  went off of: garlic, ehb, epo. Finishing my bottle of Silver, then going off it too. dr suggested i start having bone broth. she also wants me to do a metal toxicity test, i’ll do it after i get back from bend next week. since we aren’t making any headway with what we’ve been trying, she wants to go a different track. Dr also wants me to start taking butterbur. need to start taking the xiao chai hu tang again.  –pain has been awful these past two weeks, plus i got sick and then started my cycle a few days after getting over the cold. migraines hit hard in evening and sometimes i wake up with them in am. have lost 1.6 lbs last two weeks.

3-24 – started back up on doxycycline on the 20th. As well as the sacro-b. Upped my iron to 15ml a day on the 22nd. Taking phosphorus 1-2x a day. Needing melatonin to sleep still. Pain is definitely worse in evenings. Still daily migraines, tmj and calf/feet tenseness and a bit of cramping. Migraine seems to ease a bit more quickly the past few days. Skin is clearing up again, hopeful it’s the antibiotics and it’ll stay clear. Able to focus again, have even been writing.

3-29- ceanothus – trying 3 drops am, 2 drops aft, 1 drop  eve to see if it helps with the evening migraine and fatigue. have gained back the weight I’d lost.

Migraines: They have increased in intensity without hitting 10 at all, I don’t think! that’s cause for celebration, folks. This past week-ish they seem to respond to treatments a bit better. The rest of the month, they were resistant to everything.

Digestion/TMJ: Once again, my digestion is off. Looking forward to stocking the house with healthy options and see if I can get it to calm down again. TMJ… I’ve been clenching/grinding so much lately that my teeth hurt most of the time. The jaw pain is normal now. Finally rescheduled my appointment with the ‘jaw doctor’ as I’ve labeled her, since I had to cancel my last  appt when I was sick. (anyone else find that statement ironic, ‘when I was sick’?)

Sleep: I’ve been needing Theanine or Melatonin to get to – and stay – asleep. It’s frustrating since I was able to get off of it for a while. BUT! The night sweats have gone away.

Memory/Brain Fog: Brain fuzziness (a step down from fog??) reappeared while I was in Bend. Over-stimulation perhaps? It was strongest on my birthday, sadly. Gives one the sense of not being present. I’m hoping this eases soon.

Vision: My eyes still frequently get blurry, or just take a bit longer to focus than they should. It hasn’t progressed though.

Feet/Leg cramps: The cramps are random and maybe once a week now. Typically it’s just tenseness – which can be distracting and painful on their own. Sometimes soaking them in epsom salt helps.

Dizziness: This got worse recently, but I haven’t been watching my salt intake.

Joint Pain: This has mostly shifted to my knees/ankles. I’m so thankful that it has left my fingers – that was the worst for me.

Fatigue: This is still a struggle. Like I said above, I’m gonna try taking 1 drop of Ceanothus  to see if it helps.

~I have started following some fellow lyme disease sufferers/warriors on Instagram and in talking with one of them the other day, I learned that ‘they’ have recently learned that you can get Lyme, not just from ticks, but from other nasties like mosquitos, fleas and spiders. SPIDERS, people. I’ve been thinking back on my symptoms lately and kept getting stuck on the timeline of when I was in Culinary school and got a rather awful spider bite on my cheekbone. It swelled up so bad that it impaired my vision. Now, I grew up in an older house and got bit all the time so I didn’t think anything of it. But now…. It doesn’t really help much, other than to mentally be able to put more of a year on it. By then, I’d had migraines for a few years but after that… everything started to crash. Literally.

That’s all for today folks, I’m gonna rest and then – hopefully – get out to go grocery shopping!

Happy Wednesday,

Laura

 

Health update – January 2017

31 Jan

 

Well, folks, as I’m writing this I’m fighting nausea like nobody’s business – along with a migraine, so forgive me if it doesn’t all make sense.

fightinglymemigraines

Here’s the update from my migraine app from this past month : I have had 1 attack-free day. They average at 34 1/2 hrs. I’m (supposedly) getting 8 hrs of sleep a night. 76% of them occur on a weekday. The pain average is 8, minimum a 7, maximum a 10. Fatigue/achiness, muscle stiffness and headache are the top 3 auras. Neck pain, interrupted sleep and lack of sleep are the top 3 triggers. Likely triggers are interrupted sleep, pre-cycle and neck pain. Symptoms are neck pain, jaw pain and fatigue. Frequent start positions are temples, eyes, jaw, neck and base of skull. Relief methods that seem to work are clonidine, pulsatilla, oils and food/water.

~While I love having this app, it isn’t as accurate as I’d really like. part of that problem is that one must pay close attention and then input said attention into the app. So. perhaps it’s not fully the app’s fault. (coughcough)   To compare with last month’s though, the average time has gone down, while my nightly sleep has gone up! Most are now occurring on weekdays, and average pain has gone down one level. Fatigue is still a major issue; neck pain is a consistent trigger and symptoms have stayed the same.

What’s interesting about this ‘synopsis’ is that I would have said the pain had gone up this month…. but! I will trust what I put in the app and roll with it.

Overall Health: Honestly, I’ve felt so rotten this month that it’s really started to affect my moods and productivity. The chronic pains that have flared up again are so bad that I just don’t want to move majority of the time. Heaven save me from living on the couch.

Treatment: I made the mistake of running out of several vitamins/supplements at the same time and have been paying for it….dearly. I’ve added almost all of them back in, as well as iron and feverfew. My Dr. says she has rarely seen someone as low in iron as I am. I’m also super high in fibrinogen, a protein that is essential for blood clot formation. I’ve been needing to take 3-4 clonidine a day for the migraines.

Migraines: They seem to have gotten more intense as the month has progressed. Only one hit a ’10’ though. something to be grateful for. The clonidine and natural pain killers I use haven’t been very effective. At all. Nothing has been touching these things = super fun, that.

Digestion and TMJ : Digestion has been some better. Jaw pain is about the same.

Sleep:  Aside from taking Theanine a few nights last week, I haven’t been taking anything to help me sleep. It’s so nice. I am waking up once or twice a night and am sometimes still able to get back to sleep when I wake early in the am. This is not to say that I’m waking up rested and refreshed (I was probably a pre-teen the last time that happened). I’m fighting exhaustion , and taking naps all the time.

giphy

Memory/Brain fog:  This has been a continued struggle. I am praying that the iron i’m taking helps with blood flow and gets more oxygen to my brain, thus improving this. Fog hasn’t been too awful, but gets worse when i’m in a crowded room.

I get to add another few items to this months list:

Vision– my eyes are having a hard time focusing, even with my glasses on. it’s of course worse when I’m tired or the migraine is worse but it’s a pretty constant thing these days.

Feet/leg cramps –  these are back like crazy. i’m thankful that most of the time it’s just a matter of tenseness rather than straight up cramps but it’s still painful.

Dizziness- i’m having to remember to stand up slowly. no sudden movements.

Joint pain – like none other, people.

Nausea – Out of everything I’m adding here, this is the one that I’d ask to go away first. it’s what’s keeping me down today, when the migraine isn’t bad.

Moodiness – yes, it’s bad enough that it gets its own category. I was so glad when my moods evened out months ago that it’s frustrating this problem has resurfaced.

giphy1

I have also lost almost 5 lbs – and then promptly regained it.

Well, there it is – January’s health update! I’m not off to a very good start this year but my doctor is such an encourager, that I’m clinging to her optimism. I’ve also been going to a chiropractor for my back/hip pain and am summoning up the courage to call the dentist and make a TMJ appointment. So perhaps February will see a change.

Check out my Chronic Pain page to see all my health updates and health advice!

~Laura

 

 

 

Health Update – 10-31-2016

31 Oct

Note to self: Don’t ever run out of EHB. you’ll regret it.  also, take gelsimium frequently, that stuff is miraculous.

fightinglymemigraines

 

Overall Health:  This month was rough. The pain levels were either at a 7/above or were nonexistent. My new migraine tracking app, Migraine Buddy, says my migraines last an average of 20 hrs; pain starts mainly in temples and back of neck; triggers are too much activity, interrupted sleep and neck pain; main symptoms are fatigue, neck pain and throbbing pain and that the combo of clonidine, heat pad and sleep always help ease the pain. In other words, I’m enjoying the new app but it isn’t completely accurate on a few things. I have pushed myself and gotten out with the dogs more this month. I was also able to survive almost all of the celebrations of the High Holy Days this month without collapsing or leaving service early like I did/had to last year.

 

Treatment:  I have been on all the added supplements/vitamins for 3 weeks now. Aside from starting to smell like GARLIC all the time, there haven’t been any adverse reactions. I  did end up buying Garlitrin from Integrative Therapeutics, here’s a part of their description , ” Enteric-coated tablets reach the small intestine, so you get garlic where you need it, and avoid garlic breath.”. So far, my OH hasn’t said anything about how I smell like garlic, so I’m really hoping these do the trick, because I am supposed to be taking 4 of them a day!

 

Migraines: Severe. Like my app said, 20 hrs is the average. The most ‘exciting’ was the one that lasted 5 days. oh yeah. that’s how I like to spend my days. mmhmm. (NOT)

Digestion and TMJ:  Digestion has improved marginally. Jaw was doing better before this past week.

Sleep:  It’s improved since last month.  I still don’t feel like I’m sleeping well but I seem to be averaging 7/8 hrs a night – with waking up 2 or 3 times. Now if I could only be sleeping deeply enough to wake refreshed…naps aren’t daily but still frequent

Memory:  I haven’t noticed it worsening, honestly I tend to forget (haha) that it’s as bad as it is until I’m in conversation with someone and then it hits me.

Daily Vitamins:

Clonidine – probably averaging 2 a day

Pulsatilla and Belladonna – the more often I remember to take them, the better they work, shocking, I know

1 each of B complex, B2, Calcium, D3, Fish oil, Copper, Garlic (trying to up to 2 a day of garlic)

2 each of Magnesium, Olive Leaf Extract, Vitamin E

3 Evening Primrose Oil

6 EHB

on Days 15-28, 1 each of Horse Chestnut Extract and Chaste Tree Berry

1/2 tsp Silver nano ( 2x a day)

All that adds up to one very full weekly pill box, let me tell you! I recently found a website where I can buy what I need – and they don’t charge shipping! I’ve only ordered EHB and the Garlic from there but they seem to be legit and are very prompt in filling their orders!

Stick around and check out my other health updates!

9/23/16

8/23/16

Symptoms of my Lyme

7/27/16

Fighting Lyme and Migraines

The Big Health Update

 

Come back Friday to hear how my first week of Nanowrimo went!

~Laura

 

Health update – July 27th ’16

27 Jul

What with a trip to N.C. , my parents visiting this past weekend and a yard that’s been begging for TLC, writing here at SGL has been sadly neglected! I have also started two different posts, and have another one just waiting in the wings to be written, but it’s so infernal hard to concentrate today that this is all I can get down!

fghtinglyme

Overall Health: I’ve been very tired lately. Not sure if I can claim it’s adjusting back to this time zone anymore either. The first week and a half I only had one severe, long lasting migraine, this past half a week I’ve had two or three. My skin cleared up almost over night which was wonderful. My memory hasn’t improved yet but I must be getting more used to it….oy.I had to quit taking the Samento and have just started Xiao Chai Hu Tang. Focusing on anything for long is difficult right now as well. Still slowly gaining weight.

Treatment: I had to stop taking the Samento about 2 weeks ago because my reaction to it was just too strong. Once off of it, the achy weakness has disappeared and while I’m still tired it’s not anywhere near like it was before. I just picked up Xiao Chai Hu Tang yesterday and have started taking it. I have taken it previously and it helped with migraines, digestion etc, so I’m hopeful to notice a difference rather quickly. Plus, I don’t have to wait 30 min before eating like I did with the Samento!

Migraines: As long as I remember to take Pulsatilla and/or Belladonna and/or Clonidine when the pain starts, it doesn’t get so severe. When it does hit, most of the time it doesn’t stay bad for long. When it stays severe,  nothing I do seems to help.

Digestion and TMJ : No change to report. which is good!

Mood: I’ve finally evened out to feeling more like my old self, the one who notices the little things ( the fridge needing wiped down, for instance)

Sleep and Memory : nothing has changed here either. both are still iffy but not worse!

Daily Vitamins:

Clonidine – still averaging 2 a day probably.

Fish Oil – have upped to 2 a day every other day (1 on the other days)

and of course, the list from the first update!

I’m a little disheartened by such little progress but there really shouldn’t be any since I was off anything extra these past few weeks. If I could get better sleep and not be so ridiculously tired, that would help so much!

Here’s a link to the last update as well!

Thanks for stopping by, and I PROMISE to get some book reviews up soon!

~Laura

Fighting Lyme and Chronic Migraines

8 Jul

well, these two weeks have FLOWN by and now it’s time to update on how fabulously I’ve been feeling. Ha! Not fabulous, let me tell you that first off. Oy. But we were able to have a lot of fun over the 4th of July weekend! Thank you to everyone that came to our first BBQ! It was SO much fun and we had such a great turnout! OH (other half) and I look forward to hosting another one. We also got down to Bend to see family and friends for a few days and had an absolute blast. Family barbeque where the kids just couldn’t get any cuter. Abby learning to swim in the pond. Holding a sweet little baby. Line dancing at midnight. Dinner with my parents and Auntie and Uncle.  The fun continued right until we left!

 

Ok, I’ll quit playing with pictures and get to the update…. if you missed the first update, check it out!!

fghtinglyme

Overall Health: I seem to feel either really good or really awful, there hasn’t been much of an in between these last few weeks. My memory hasn’t improved, which makes remembering to take the treatment hard! Sleep hasn’t improved either. My skin has slowly started to clear up, thank heavens! The house is staying in pretty good shape , now I’m dreaming of working in the yard and cleaning my car!

Treatment: I’ve been back on the Samento for 10 days now and good grief, it’d be nice if I could remember to take all 3 drops each day. I’m doing good if I take 2. I’m thinking I’m gonna have to set alarms on my phone… Remember, I have to wait half an hr after taking it , to eat. AHEM. Not cool, because I tend to remember when I’m sitting down to eat. sigh. I Will get the hang of this because I’m not reacting near as strong as before. I have run out of Riboflavin though, so I’ve Got to get some today, remind me of that will you? hehe.

Migraines: This might be TMI for some of you reading this and I’m sorry… Due to it being that wonderful time of the month, my migraines have been predictably severe. This morning I don’t have one but that hasn’t been the norm the past week and a half. The pain has been severe, and stayed so most of the day this past week especially.

Digestion: This past week I seem to have gotten past my stomach freaking out at almost every meal I eat. Which is a wonderful change.

TMJ: I don’t seem to be clenching my jaw during the day as much – at least I haven’t caught myself doing it like I was. It’s been popping more the last few days, and is super tender in the mornings. Hard to chew harder foods sometimes.

Mood: I feel more myself although I still tend to overreact to the littlest things.

Sleep: hasn’t changed at all – still have to take Melatonin or Theanine every night. Still wake up at least twice. I’ve been taking a  lot more naps since I got back on the Samento.

Brain Fog/Memory : Fog hasn’t been as bad as in the past but memory is deplorable. I’m still struggling to remember things I’ve always known, and to find the right word. Still haven’t been able to write much on my novel. Focus has been a little better in some situations, (able to watch movies now)

Daily Vitamins :

Still averaging 2 Clonidine a day (it’s been 3 a day these past several days though)

I’ve been trying to up my intake of Fish oil to 2 a day without reaction.

I’ve run out of Riboflavin, getting more today! Need to up my intake though

Seem to be doing fine off the Cordyceps

And that’s it! I’m gonna start working on the list of symptoms, I want to get it up before I go on vacation next week. This blog has wonderful info on Lyme disease, I’ve been following her for a few years now.

Do you have any tips on remembering to take the Samento? Or do you have direct experience with Samento? I’d love any advice!

Thanks for stopping by!

~Laura

The Big Health Update

21 Jun

Well friends, I have been trying to sit down and do a COMPLETE AND AWESOME review of the Lord of the Rings trilogy but I’ve decided today to give you all some news and start a regular health update. That way I’ll be able to see if I’ve made any progress as time goes on – I try keeping track in a little notebook but this will be more detailed =) Warning, this is going to be a long post but future updates won’t be quite so in depth!

bighealthupdate62116

3 weeks ago today I found out that I have Lyme Disease. I’ll share the definition of Lyme from a great little book I picked up at the library “Beware the Ticking Lyme Bomb” by Craigger Creed.

“The standard, quick explanation goes something like ‘ Lyme disease is caused by the bacteria Borrelia burgdorferi, is transmitted by deer ticks, produces a bull’s eye rash, and is usually cleared up quickly with antibiotics’. But this barely scratches the surface of the tip of the iceberg…often there are additional bacteria, protozoa, etc involved … and have been implicated in Lyme-induced skin and neurological disorders.”

The problem is, a high percentage of people do not have the bull’s eye rash, or any of the other rashes that indicate they have recently been bitten by a tick that is sharing Lyme with you.

Lyme has earned the nickname “The great Imitator” because it acts like so many other medical conditions. The bacteria, Borrelia, are spiral shaped spirochetes that are marvelous at hiding and disguising themselves, making it even harder to diagnose. The symptoms are many, and seemingly unconnected to each other.

Lyme is very complex, and I don’t have the ability, or the knowledge, to delve deep into it here for you. I recommend the above book for a quick, light read as well as the book that I have just started, “Why Can’t I Get Better?” by Richard I. Horowitz, MD. for a more in-depth look. Let’s suffice it to say that when I go down the list of symptoms I have most of them. Which puts me squarely in the ‘chronic Lyme or Late-Disseminated Lyme stage.

Overall health: I am thankful to finally have a diagnosis (!!) although I am still trying to wrap my head around that fact. strong reaction to new treatment (more on that in a minute). Memory has gotten worse the last month-odd.Skin has broken out and stayed bad past 2 1/2 weeks. Sleep is still spotty. Am able to keep the house decently clean, huzzah! and able to walk the dogs/play with them every so often.

Treatment: my naturopath has me taking Samento (aka Cat’s Claw). I have been on it 10 days and right from the start, this stuff is POWERFUL. you start at one drop a day, for 3 days. then 2 drops a day for 3 days and so on til you get to 30 drops a day. I wasn’t too concerned about it, totally do-able.  But this stuff hit me hard about 2 hrs after taking it – made me feel like I had the flu, all achy and tired and stuck on the couch. Yesterday I called my dr, and I’m stopping taking it for a week. Should take that long for the reaction to go away. Then i’ll start it up again and take it for a few days (3 drops a day), and hope the reaction doesn’t come back. if it does, I’ll have to take something else to kill the infection. A list of everything I’m currently taking will be at the end of this post.

Migraines: Except for last night when it hit a 9, they haven’t reached an 8 in a few weeks. When they do get severe, they don’t typically last longer than a few hours. Still pain daily that tends to stay around a 6. Gets worse in evenings/weekends (poor OH!). Still get worse when in a busy/loud/bright environment.

(sorry the picture is blurry but to give you an idea.. 8 =intense, pain is severe. talking and listening are difficult. 6= distressing. think about pain all the time. give up many activities because of it)

letter to the weary

Digestion: Hasn’t been that great lately. It does better when I stay away from heavy foods (aka bread!) and of course, any of my allergens. (gluten, dairy, eggs, beef, cranberries, sugar)

TMJ:  Is in direct proportion to pain level of migraines. Hasn’t been popping as much lately although I have started clenching my jaw during the day as well, causing teeth and jaw to ache frequently.

Mood: Has stayed good, even after going off of chinese herbs for it (cannot remember the name right now). Sometimes i get very irritated/angry for the dumbest thing (past what is normal for me). So, still some room for improvement.

Brain fog/Memory: has gotten worse this past month. Struggling to remember names/titles/things I’ve always known. Not able to focus for very long (example: can watch a tv show but movies are too long) Haven’t been able to get my brain to ‘work’ so haven’t written very much on novel.

Sleep: Have to take either a melatonin or Theanine every night in order to sleep. Do have to rotate them every few nights for them to work. Wake up at least twice in the night. When on Samento, was taking naps that were a few hrs long most days.

Daily Vitamins/Pills

Prescription: Clonidine. Averaging 2 a day.

Magnesium. Calcium. D3. Olive Leaf Extract. Basic B Complex. Fish oil. = 1 a day

Ribofalvin, 2 a day. Evening Primrose Oil, 3 a day.

2 weeks every month – 1 each – Horse Chestnut Extract and Chaste Tree Berry

Have gone off of Cordyceps to see if energy drops.

There you have it. The fact that I am vastly better than maybe 3 months ago is encouraging but pain is still a daily, severe fact of life in this household. I want to go through a list of Lyme symptoms and share them with you soon, as some of them I never realized were symptoms and not just something that my body did. Who knows, if I had told my doctor about them 10 years ago, maybe we would have been able to diagnose this and i wouldn’t have progressed to this point.

Thanks for stopping by and getting all the way through this post!

*I promise, promise, promise, LOTR review will get up by the end of the month!*

~Laura

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