Tag Archives: fatigue

Health Update – April 2017

28 Apr
 It’s been a very rough month, full of reasons that I have to move, even when I’m working with no spoons. Ugh. As important as I know doctor appointments are, I admit to wishing many times that I could just stay home on my couch.
I wrote a post on pain keeping you up at night a few weeks ago, go check it out! If you want to follow me on instagram –  I do regular updates on how I’m doing and share lots of happy puppy pictures.

Health Update – Feb 2017

10 Mar

Happy Friday friends! It’s been a while, I know. Sometimes life just kicks you down a bit and you’ve got to let go of the blogging goals. (plus my parents were in town last weekend to celebrate OH’s birthday, such a fun time!) So, this update is late, but at least it’s happening. Here we go:

fightinglymemigraines

According to my migraine app (Migraine Buddy), my migraines have averaged 30 hours. I’ve had 26 attack days, 5 free days! They’ve happened 80% on weekdays at an average of 7.5 pain intensity. My top three aura/prodromes were weakness, muscle stiffness and fatigue/achiness. Top three triggers were neck pain, interrupted sleep and too much activity. Top three symptoms were jaw pain, neck pain and throbbing pain. They frequently started in the temple, jaw and base of skull.

Overall Health: About the same as the past few months, although I’ve been dealing with the emotional side of it better these past few weeks. Realized at the doctor’s last week that I haven’t gotten rid of any symptoms, have only added more. Rather discouraging.The never-ending search for what will help is exhausting and I’ve been dreaming of being healthy and able to homestead like I want to =)  Plus I got sick earlier this week so not sure if my newest treatment attempt is helping or not.

Treatment: I started taking Ceanothus on the 9th of Feb and it seems to help so far as it gives me a burst of energy (kind of like caffeine) and I’m not as bitterly cold all the time. It seemed to get rid of the nausea as well, and eased the joint pain. By the end of the month, when I went in to my dr, I hadn’t improved much past that so she suggested I try an antibiotic for two weeks. I’ve been on it for one week but have been sick for most of it… so is it helping? We’ll see. If this doesn’t help, I’m not sure what we’ll do. My OH is getting frustrated that we’ve made so very little progress and I have to admit that I’m right there with him.

Migraines: They might have eased since Jan… it’s hard to really remember. They have been hitting hard and frequent. Typically in the evening.

Digestion and TMJ: my digestion has been a bit off again lately. perhaps too much sugar?? TMJ—well, that’s a story in itself. Remember when I said my goal for Feb was to ‘survive dentist appointment’? I survived it but the news was not-so-friendly. I’ve added grinding to my clenching of my teeth over the last four years. And that constant stress spreads a whole host of fun symptoms – explaining at least in part why I’ve gotten worse. I’ve got to reschedule to meet with a craniosacral chiropractor (was supposed to go in this past week but the cold I got prohibited that!) in the hopes that the therapy will help realign my jaw. Thankfully, my teeth themselves are fine and there’s no further need to go to the dentist. Huzzah!

Sleep: I’ve been having to take Theanine to get to sleep again lately. It’s frustrating but I’d rather get at least six hours than lay tossing and turning and be guaranteed  to have a migraine the next day.

Memory/Brain Fog: This has improved the past few months (!!!) While I still struggle to gather my thoughts when I’m in a crowded/noisy room, and anything long term is hard to remember, I’m not kicking myself for forgetting the littlest things like I was doing. Brain fog is pretty rare now, typically only occurring when the pain is severe.

Vision: My eyes are still frequently blurry but it seems to be slightly better than it was. I’m hopeful this continues to clear up!

Feet/leg cramps: Still tense and minor cramping. Very few bad cramps. Mainly in feet lately.

Dizziness: Only if I’m really tired and have had too much salt. Thank goodness this is mostly gone!

Joint Pain: This one has eased as well although the ache is definitely still present. Any lessening is a blessing!

Nausea: This is gone and, as I said above, I think it’s in thanks to the Ceanothus. I’m not for sure but I’m so thankful that it’s gone.

Moodiness: This one has also mostly gone away. I’m pretty sure my OH is as glad as I am about this. hehe.

Fatigue: This is one of my biggest struggles and I’m not sure why it hasn’t been on this list at all yet. Even with the energy burst from the Ceanothus, my fatigue is REAL, people. I’m looking forward to the day when I can look at a flight of stairs and not feel a sense of dread.

It’s so nice to have seen at least a few symptoms ease/disappear but I’m afraid that joy has gotten swallowed by the rest of everything else. Until this past week of sickness, I was getting the dogs to the park about three times a week. I’ve also started trying to get Lady to walk .5 mile while there. She’s older and needs to lose weight and it gives me a reason beyond myself to. get. moving. And that’s always a good thing.

That’s the update for February, although it is late! Have a fabulous weekend and we’ll hope to see you back here next week.

~Laura

p.s. don’t forget to spring your clocks forward on Sunday!!! 

temp_16_30_20_974

 

Health Update – 12-2-16

2 Dec

Happy December friends! Thanks for stopping by SGL today, I’m so glad you’re here! Once a month, I review how I’ve been feeling – how the treatment for my Lyme Disease is going, and all the other fun things I’ve got going on.

fightinglymemigraines

November was a month of contradictions. For the majority of it, I felt really beyond awful. But when I felt good – I felt really good! There wasn’t much in between for me. I had some ‘fun’ new symptoms start/kick it up a notch and my migraines tended to last an average of 55 hours. Yep. 55 HOURS. If that’s not fun, I don’t know what fun is. Stores are still places of pure torture wrapped in spikes and crocodiles.

For a quick report from my migraine app – Migraine Buddy –  88% happened on weekdays, 12% weekends. Average pain level was 7.6 , high was 9 and low 6. My top Auras were fatigue/achiness and muscle stiffness. My top 3 triggers were neck pain, interrupted sleep, pre cycle. Top 3 symptoms were neck pain, fatigue and throbbing pain. Frequent start positions were temples, eyes, jaw and neck. Reliefs that seem to work consistently are : clonidine, oils, belladonna/pulsatilla and heat pad.

Overall Health: Much the same as October, ROUGH. Like I said, fun fun symptoms to keep me guessing. Lights and sounds started hurting bad again. Constant calf cramping (literally 24/7) along with severe random cramps no matter what I am doing. A harsh cough a few times a week (you know that deep, painful cough you get when you’re sick? yeah. that.) Daily fatigue/achiness.  Ringing in ears off and on.  Some nausea when I move. I lost a few pounds, only to promptly gain them back.

Due to the calf cramps, sleeping has been difficult. For a few weeks, I wrapped up in my cozy electric blanket most every night – it was the only way to ease the pain so I could sleep. I’ve started soaking my feet more often, hoping the epsom salts helps.

Treatment: I have backed off the garlic pills, to just one a day and have added back in the Xiao Chai Hu Tang. I started with one pill a day and have gone up to 2 a day this week to see how I do. Otherwise, I am on everything my doctor put me on last time I was there.

Migraines:  So, on one hand I feel they are getting better. On the other – 55 hours. I’ll take what I can get but aren’t they supposed to get shorter too????

Digestion and TMJ :  digestion has been touch and go – what with feeling so poorly it was hard to cook (read: pasta and french fries) and juicing pretty consistently…. I definitely digest better when I stay away from breads/pastas/etc, and drink at least 3 glasses of juice a day. (juice being kale, cucumber, celery, carrots, lemon, ginger and apple). My jaw hasn’t been good. often it’s been an indicator that pain/migraine was on its way.

Sleep: My app says I’ve been getting about 7 hours a night but I certainly don’t feel like it! I am still waking up 2-3 times a night to go to the bathroom, and sometimes can’t go back to sleep the last time. I’ve been taking a lot of long naps lately – but still am exhausted by late evening.

Memory: this might actually be improving – or at least it stopped its downward spiral. Being in Bend for a week with family and friends, I noticed I wasn’t saying ‘um’ as much, or searching for the correct word. Granted, I still did it but I was able to carry on a coherent conversation and that wasn’t the case a few months ago.

Daily Vitamins/Supplements:

Clonidine – averaging 2 a day (although many, many days these past few weeks I’ve needed 3, and sometimes 4 to get through them. ugh)

Pulsatilla and Belladonna – I’d run out of one in time to replace it before I went on vacation and then promptly ran out of the other. oy.

1 each of B complex, B2, Calcium, D3, Fish oil, Copper, Garlic (trying 2 every other day of garlic)

2 each of Magnesium, Olive Leaf Extract, Vitamin E

3 Evening Primrose Oil

6 EHB

on Days 15-28, 1 each of Horse Chestnut Extract and Chaste Tree Berry

1/2 tsp Silver nano ( 2x a day)

1 TB Apple Cider Vinegar in a glass of water in the mornings

 

That’s all I can think of. I am feeling like this Lyme Disease is kicking my butt right now, so it’s probably good timing that I’m going in to my dr. tomorrow morning to get some motivation and encouragement (yep, she’s that awesome) along with some acupuncture. I don’t know if some of this is herxing or what, but I’m done.

*on a purely fun side note, I won nanowrimo!!! i’ll tell you more what that means next week! *

~Laura

Feel free to check out my other health updates here on my Chronic Pain page!

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