Tag Archives: health update

Health Update for May 2017

26 May

Happy end-of-May dear readers! I’m typing this out on my back porch with Lady laying just inside the open door and Abby running back and forth between me and the bone in the yard and OH in the living room. It’s a good evening so far.

fightinglymemigraines

 

Migraine app notes: I had 10 attack days lasting average of 68 hours. I had 2 attack free days. I took 56 clonidine ( 4 more than last month) They happened 50% of the time from 12 pm to 6 pm. Average pain is 7.5, which is pretty good. Supposedly I’m sleeping around 8 hours a night, migraine or not. ha. If only. Top 3 aura/prodrome are muscle stiffness, fatigue/achiness and weakness. Top 3 triggers are neck pain, too much activity and lack of sleep.Top 3 symptoms are neck pain, jaw pain and aches. Frequent start positions are the same, temples, jaw, eyes, base of skull. Soaking my feet has helped a lot this month

Overall Health/Treatment: Up until this past weekend the neurological pain (aka Fibromyalgia) and all was terrible and I was pretty much on the couch. I had some bursts of energy  but not until recently  did it ease enough that I felt like getting up and doing something. I struggled with anxiety/guilt a lot as well. Focused on adding in/increasing supplements to support this poor body.  The evenings are the worst, no matter what I try. I’ve been going to bed in a lot of fibro pain and migraine, just praying I’ll be able to sleep.

notes: 4-28-Migraine was worse today. Aches eased until evening- went to dog park and made dinner then they increased in my calves bad. Barely able to keep migraine down today. Nice to have some energy and the brain fog lifted but the pain’s wearing me down. Have had some muscle twitches today

4-30- today has left me bone- weary. Even the movement of my tongue hurts my jaw. The all-over aches have eased a little, but the cramps are little shivers that regularly run through the base of my feet. Bad migraine today. Wasn’t aware of what was going on around me for a while. Nap helped but body is SCREWED up. Tomorrow is going to be a day of loving on it. 

What do you find hard to tell people about your health? 

 

Health update – January 2017

31 Jan

 

Well, folks, as I’m writing this I’m fighting nausea like nobody’s business – along with a migraine, so forgive me if it doesn’t all make sense.

fightinglymemigraines

Here’s the update from my migraine app from this past month : I have had 1 attack-free day. They average at 34 1/2 hrs. I’m (supposedly) getting 8 hrs of sleep a night. 76% of them occur on a weekday. The pain average is 8, minimum a 7, maximum a 10. Fatigue/achiness, muscle stiffness and headache are the top 3 auras. Neck pain, interrupted sleep and lack of sleep are the top 3 triggers. Likely triggers are interrupted sleep, pre-cycle and neck pain. Symptoms are neck pain, jaw pain and fatigue. Frequent start positions are temples, eyes, jaw, neck and base of skull. Relief methods that seem to work are clonidine, pulsatilla, oils and food/water.

~While I love having this app, it isn’t as accurate as I’d really like. part of that problem is that one must pay close attention and then input said attention into the app. So. perhaps it’s not fully the app’s fault. (coughcough)   To compare with last month’s though, the average time has gone down, while my nightly sleep has gone up! Most are now occurring on weekdays, and average pain has gone down one level. Fatigue is still a major issue; neck pain is a consistent trigger and symptoms have stayed the same.

What’s interesting about this ‘synopsis’ is that I would have said the pain had gone up this month…. but! I will trust what I put in the app and roll with it.

Overall Health: Honestly, I’ve felt so rotten this month that it’s really started to affect my moods and productivity. The chronic pains that have flared up again are so bad that I just don’t want to move majority of the time. Heaven save me from living on the couch.

Treatment: I made the mistake of running out of several vitamins/supplements at the same time and have been paying for it….dearly. I’ve added almost all of them back in, as well as iron and feverfew. My Dr. says she has rarely seen someone as low in iron as I am. I’m also super high in fibrinogen, a protein that is essential for blood clot formation. I’ve been needing to take 3-4 clonidine a day for the migraines.

Migraines: They seem to have gotten more intense as the month has progressed. Only one hit a ’10’ though. something to be grateful for. The clonidine and natural pain killers I use haven’t been very effective. At all. Nothing has been touching these things = super fun, that.

Digestion and TMJ : Digestion has been some better. Jaw pain is about the same.

Sleep:  Aside from taking Theanine a few nights last week, I haven’t been taking anything to help me sleep. It’s so nice. I am waking up once or twice a night and am sometimes still able to get back to sleep when I wake early in the am. This is not to say that I’m waking up rested and refreshed (I was probably a pre-teen the last time that happened). I’m fighting exhaustion , and taking naps all the time.

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Memory/Brain fog:  This has been a continued struggle. I am praying that the iron i’m taking helps with blood flow and gets more oxygen to my brain, thus improving this. Fog hasn’t been too awful, but gets worse when i’m in a crowded room.

I get to add another few items to this months list:

Vision– my eyes are having a hard time focusing, even with my glasses on. it’s of course worse when I’m tired or the migraine is worse but it’s a pretty constant thing these days.

Feet/leg cramps –  these are back like crazy. i’m thankful that most of the time it’s just a matter of tenseness rather than straight up cramps but it’s still painful.

Dizziness- i’m having to remember to stand up slowly. no sudden movements.

Joint pain – like none other, people.

Nausea – Out of everything I’m adding here, this is the one that I’d ask to go away first. it’s what’s keeping me down today, when the migraine isn’t bad.

Moodiness – yes, it’s bad enough that it gets its own category. I was so glad when my moods evened out months ago that it’s frustrating this problem has resurfaced.

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I have also lost almost 5 lbs – and then promptly regained it.

Well, there it is – January’s health update! I’m not off to a very good start this year but my doctor is such an encourager, that I’m clinging to her optimism. I’ve also been going to a chiropractor for my back/hip pain and am summoning up the courage to call the dentist and make a TMJ appointment. So perhaps February will see a change.

Check out my Chronic Pain page to see all my health updates and health advice!

~Laura

 

 

 

Health Update – 9/23/2016

23 Sep

How in the world can September already be almost over?! Although, the coming of all things pumpkin and fall does help ease the shock of it 😉

 

fghtnglyme92316

Overall Health: since getting back on the majority of my vitamins/supplements I’ve been better – comparably. For about a week I was stuck on the couch due to unbelievable weakness and exhaustion. I haven’t been quite so negative. I haven’t had to nap so often lately, but sleeping at night has been really rough. I’ve been able to walk the dogs a few times a week, which benefits all 3 of us.

Treatment: I went in to my doctor the beginning of this week and we changed up what I’ve been taking, and she sent me home with several new things to start! I am currently off the Xiao Chai Hu Tang (possibly the cause of my extreme exhaustion last week) and have started taking Silver. (yes, silver! apparently while it’s very gentle on you, it kills things, who knew?) Tomorrow I start taking EHB, then if I don’t react negatively to that, 3 days later I start Garlic pills (oh joy). 3 days later, Vitamin E and then, you guessed it, 3 days after that, Copper pills. She’s also told me to start drinking 1 TB Apple Cider Vinegar in the mornings.

Migraines: Killer. They have been going from a 5 to an 8 (or higher) in the blink of an eye, making thinking (and anything else really) incredibly difficult.

Digestion and TMJ: Neither have changed here-which means they aren’t that good… but while my jaw has been hurting a lot, it doesn’t pop as much as it used to! Silver lining right there!

Mood: It’s been better overall this past month, thank goodness. I feel like I mostly am back to myself although I do still feel a tad anti-social

Sleep: Except for the past few nights, it’s been atrocious. Of course, the nights I do sleep better I have nightmares..sigh.

Memory: Once again, it hasn’t improved but aside from freaking out late one night because I couldn’t remember words to songs that I’ve known for ages, I haven’t noticed any worsening.

Daily Vitamins:

Clonidine – for most of this month I was taking 3 a day but since Sunday it’s backed off to 1 or 2 !!!!!

off the Xiao Chai Hu Tang

Pulsatilla and Belladonna – finally got some more of these amazing tinctures!!!

Here’s a full list  – although I will have to update this next month!

Stick around and check out my other health updates!

8/23/16

Symptoms of my Lyme

7/27/16

Fighting Lyme and Migraines

The Big Health Update

 

Next week is the monthly Book Review, come back and check it out!

Have a fabulous Fall weekend,

Laura

 

 

 

Fighting Lyme and Chronic Migraines

8 Jul

well, these two weeks have FLOWN by and now it’s time to update on how fabulously I’ve been feeling. Ha! Not fabulous, let me tell you that first off. Oy. But we were able to have a lot of fun over the 4th of July weekend! Thank you to everyone that came to our first BBQ! It was SO much fun and we had such a great turnout! OH (other half) and I look forward to hosting another one. We also got down to Bend to see family and friends for a few days and had an absolute blast. Family barbeque where the kids just couldn’t get any cuter. Abby learning to swim in the pond. Holding a sweet little baby. Line dancing at midnight. Dinner with my parents and Auntie and Uncle.  The fun continued right until we left!

 

Ok, I’ll quit playing with pictures and get to the update…. if you missed the first update, check it out!!

fghtinglyme

Overall Health: I seem to feel either really good or really awful, there hasn’t been much of an in between these last few weeks. My memory hasn’t improved, which makes remembering to take the treatment hard! Sleep hasn’t improved either. My skin has slowly started to clear up, thank heavens! The house is staying in pretty good shape , now I’m dreaming of working in the yard and cleaning my car!

Treatment: I’ve been back on the Samento for 10 days now and good grief, it’d be nice if I could remember to take all 3 drops each day. I’m doing good if I take 2. I’m thinking I’m gonna have to set alarms on my phone… Remember, I have to wait half an hr after taking it , to eat. AHEM. Not cool, because I tend to remember when I’m sitting down to eat. sigh. I Will get the hang of this because I’m not reacting near as strong as before. I have run out of Riboflavin though, so I’ve Got to get some today, remind me of that will you? hehe.

Migraines: This might be TMI for some of you reading this and I’m sorry… Due to it being that wonderful time of the month, my migraines have been predictably severe. This morning I don’t have one but that hasn’t been the norm the past week and a half. The pain has been severe, and stayed so most of the day this past week especially.

Digestion: This past week I seem to have gotten past my stomach freaking out at almost every meal I eat. Which is a wonderful change.

TMJ: I don’t seem to be clenching my jaw during the day as much – at least I haven’t caught myself doing it like I was. It’s been popping more the last few days, and is super tender in the mornings. Hard to chew harder foods sometimes.

Mood: I feel more myself although I still tend to overreact to the littlest things.

Sleep: hasn’t changed at all – still have to take Melatonin or Theanine every night. Still wake up at least twice. I’ve been taking a  lot more naps since I got back on the Samento.

Brain Fog/Memory : Fog hasn’t been as bad as in the past but memory is deplorable. I’m still struggling to remember things I’ve always known, and to find the right word. Still haven’t been able to write much on my novel. Focus has been a little better in some situations, (able to watch movies now)

Daily Vitamins :

Still averaging 2 Clonidine a day (it’s been 3 a day these past several days though)

I’ve been trying to up my intake of Fish oil to 2 a day without reaction.

I’ve run out of Riboflavin, getting more today! Need to up my intake though

Seem to be doing fine off the Cordyceps

And that’s it! I’m gonna start working on the list of symptoms, I want to get it up before I go on vacation next week. This blog has wonderful info on Lyme disease, I’ve been following her for a few years now.

Do you have any tips on remembering to take the Samento? Or do you have direct experience with Samento? I’d love any advice!

Thanks for stopping by!

~Laura

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