Tag Archives: chronic pain management

Health Update Dec 2017/Jan 2018

18 Jan

And here we go again! This was a very rough four weeks for me in so many ways. I am praying that these next four are easier to get through.

fightinglymemigraines

Overall Health: I don’t feel like there’s been improvement this month, what with taking the DMSA (chelation). But my doctor is going to have me start H2PLX,  to see if  it will help with my chronic fatigue. I did learn that I’ve got Epstein- Barr Virus and my doctor and I have discussed my adrenal fatigue more these past few visits.

Dec 22- felt good today. Some fatigue. Migraine hit in evening. Front of neck hurt too. A bit of mood struggles. Fibropain flaring in yet and hands. Left calf tense all day
Dec 25/26 – fibropain flaring, especially in hands. Migraine that’s hard to get rid of. Mood struggles the 25th. Felt good till early afternoon on 26th. Restless achy pain in evenings. 
-Took dmsa the 26th, to avoid taking it on Christmas day. –
12-27 fatigue. migraine in evening. fibromyalgia flared in afternoon/evening. Hurt to open my hand all the way. Calves cramped most of the night as well. Woke up on the 28th, elbows hurt. Hands swollen. Calves still tight.
12-28 started coq10, 10ml 
12-29 have noticed that crossing my ankles left over right causes spasms/cramps in left foot/calf. 
12-30 pretty good all day till early evening. Severe migraine to a 9. Fibropain flaring. Day 26/27
1-2 started monthly. Felt some better than the day before but major fatigue. In evening, fibromyalgia flared bad. Migraine. Front of neck. Jaw. 
1-3 fatigue. Mental struggles- stressed thinking about errands/leaving the house. 
—have had a hard time getting my brain to focus for writing/editing lately— napping a lot more than normal this past week–

Migraines: These increased again – I had several debilitating nights in a row, where I couldn’t get the pain down. There have been half-days where I only had a level 4.

Sleep:  Most nights, I’m still sleeping about 7 hours (with an average of 2 wake-ups) each night, without any melatonin or theanine. I am still getting the strange/weird/scary dreams but they aren’t quite as strange/weird/scary without the sleep aids.

Memory/Disassociation:  I had a few mild cases of anxiety. I haven’t noticed any changes in my memory. No disassociation.

Vision: I think I only had vision loss once this past month. I did have the sparkles in my vision a few separate times though.

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“I can feel the emotional effects of so many nights of severe flare ups/crashes. Either tears or anger are imminent”

 

Fibromyalgia: One of my biggest struggles this time around. My left calf is consistently tight/cramping. As long as I don’t do too much with my hands (!!), they have been good overall. But the overall, moving fibropain has been intense.

TMJ:  This is still a pretty constant pain. The left side tends to hover around a 4/10, while the right side stays around a 7 or 8/10. The front of my neck hurts/tight at least a few days a week. My teeth ache and often I can feel the nerves pulsing from my jaw up to my temples.

Fatigue: Like I already said, this was (and is) bad. I’ll have days where I feel pretty good, except the fatigue is weighing me down.

Weight Loss: I have only weighed a few times. But I haven’t been strict on my diet as well as not being able to get up and moving much lately. I am really hoping that changes soon.

Mood: This has been all over the place wonky. I am going to increase xiao chai hu tang this week, as it seems to help even this problem out.

Bladder: This has, again, been a struggle this month.  Frequent trips – suddenly urgent trips. ugh.

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snuggle time

 

What I’m currently taking:

Vitamins/Supplements: A, Ashwagandha, B2, B complex, Berberine, Butterbur, Calcium/Magnesium, Chaste Tree Berry, Ceanothus, Coq10,  Complete Mineral Complex, DMSA, D3, E, Feverfew, Fibronol, Horse Chestnut, Iron, Iberogast, Noni Fruit, St. John’s Wort, Xiao Chai Hu Tang. and Soon – H2PLX

tinctures : Pulsatilla, Belladonna

essential oils – peppermint, lavender, frankincense, Doterra blends – Motivate, Peace, and a tension one that I can’t remember the name of

Clonidine – prescription pain pill

~Laura

Health Update Nov/Dec 2017

19 Dec

 

fightinglymemigraines

 

Overall Health: Fibromyalgia flared, causing more tears than normal. I had partial vision loss two times. Fatigue didn’t ease much after the IV. I’ve struggled with keeping an even mood the past few weeks. I have started DMSA (chelation) to get the high levels of lead out of me.

11-15 went to Dr Vogel. Stretched back/hip/neck, worked on jaw too. Started xcht again, 1/day
11-16 started fibronol 1/day
11/19 increased fibronol to 2/day
11-22 nauseous, migraine starting am. Traveling to bend
11-23 bad fatigue and brain fog. Needed nap early afternoon. Fibropain flared. Minor pain for day 15
11-25 bad migraine late am, up to an 8 that wouldn’t go down for a few hours. Fatigue. 
11-27 tired but feel pretty good. Energy. Jaw hurts. Fibropain flared a bit last evening. 
11-28 IV with amino acids. Fatigue. Brain fog. migraine flared in afternoon and evening. Fibropain flared late evening
11-29 fatigue. Nap in early afternoon. Some sparkles in vision. Migraine
12-3 flared in evening. Fibropain especially bad in left calf and ankle. Fluttering pain in feet. Restless pain. Migraine trying to come. Day 25 also, full moon 🌕
–mood a bit funky all week
12-12 severe cramp in right calf early am. Tight and sore all day and the next. 
12-15 anxiety before/during running errands
12-16 traveled in afternoon, movie in evening. half vision loss in left eye for about half an hr. Severe migraine hit, was able to SLEEP it off though. 
12-17 woke up feeling pretty good. Fatigue. Only some brain fog. Exhausted by afternoon. Some mood…issues in evening

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Getting the needle in was – again – painful! ugh.

Migraines:  While I’ve had a few level 10 ones, I’ve also had quite a few days where I didn’t need ANY clonidine (pain pills). SO possibly, some improvement?

Sleep:  Most nights, I’m sleeping about 7 hours (with an average of 2 wake-ups) each night, without any melatonin or theanine. I am still getting the strange/weird/scary dreams but they aren’t quite as strange/weird/scary without the sleep aids.

Memory/Disassociation:  I had anxiety running errands last week. I haven’t noticed any changes in my memory. No disassociation.

Vision: This happened twice this month, but I don’t get as stressed when it comes on, as I used to. A big part of this is, it doesn’t always mean that I’m going to be ‘dying’, like it used to. As long as I eat, take everything I can for it and lay down somewhere, I can normally avoid the extreme migraine.

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Abby made it on a friends’ instagram! SO adorable. 

Fibromyalgia: This has settled in my elbows and still flares in my pinky and ring fingers sending tingles up my arm. I am able to hold things (crochet, phone, steering wheel, etc) for longer periods of time without it cramping. Had a severe cramp in my calf (like I hadn’t had in months) that took a few days to recover from. Both calves are tight/hurt/mini cramping majority of the time. Feet hurt/shooting pains if I don’t get them up soon enough. Frequent achy/restless in the evenings.

TMJ: While it doesn’t pop all the time, this is a constant pain now. The front of my neck has started hurting frequently as well. My teeth ache and often I can feel the nerves pulsing from my jaw up to my temples. Ouch. I have started going to my bodywork doctor (once a month) again and am hoping to really start seeing improvement in my jaw!

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This is what exhaustion and pain look like. Don’t be deceived by how someone looks – so much pain can be hid with a smile.

Fatigue: Once again, this was a major problem for me. I’m thinking a big reason for it, was that we did amino acids push at the end of my IV last time, instead of the poly mba (or is it mva?)

Weight Loss: I have lost about a pound for sure. I didn’t weigh from mid October to mid December. But I am going to get more focused on this again – including being strict with my diet and trying to move more (even if that is just getting Abby on some more walks!)

Mood: This had stayed better until the past few weeks. I’m sure it’s connected to the fact that I ran out of Xiao Chai Hu Tang and am now only taking half my normal dose.

Bladder: This has, again, been a struggle this month.  Frequent trips – suddenly urgent trips. ugh.

~Laura

How have you been feeling this month? 

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Health Update Oct/Nov 2017

13 Nov

I’m currently sitting at my parents’ kitchen table, the puppies are running around all excited that it’s finally morning, mom’s making coffee, and the ground has a layer of snow. This is the way to start the day, really. – Well, that was a week ago. How has it taken me a week to get this post up? All well.

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I have to admit that I don’t feel quite ready to write this update. Have I just not been paying attention to how I’ve been feeling? Not taking good notes? Or am I just suppressing it so I don’t remember how many awful days I’ve had? But I want to share some news with you – in case you don’t follow me on Instagram :

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“…good news from my Dr appointment on Monday: “You’re healing, Laura” 
Three words that keep ringing in my ears from my doctor appointment. My Dr said them three times as I told her about some of the progress I’ve made in the last 5 weeks. 
It’s still surreal. 
As she phrased it, I was in a whirlpool going down. Now I’ve stopped, I’m just bobbing now- it’ll still be choppy and rough going but I’m not spiraling anymore. 
It was a good visit! I found out a few things, need to get in for some labs soon and finally admitted a few things (ex: going out of the house can cause anxiety! She said she’d guessed that about me and said we’ll probably have to work through those fears as I heal. ) But gosh and golly, I can’t believe it.
For more details, keep reading! 😄 
I’m not breaking down garlic, or anything fatty; my recent crying bouts just means that I’m no longer so emotionally down all the time that I’m noticing when I am down (did that make sense?); My slow/steady weight loss is a huge sign of healing; sugar definitely irritates my fibro; I’ve been able to work on my novel again! I’m pretty sure there’s more that I’m forgetting but I’m still reveling in those words. 😃💕😄 ”

Overall Health:  I have continued to notice that I am able to keep the house cleaner, work on my blog/novel, have less intense disassociation – well less intense flare ups overall. BUT – I had a level 10/disabling migraine that lasted for hours, my fibromyalgia flared awful (worse than it’s ever been) and sleeping is still a trial.

10-24 upped Iberogast to 7 drops/day. Tingles in left hand (ring and pinky up to elbow) Detox bath.
10-25 fatigue today. Migraine in aft/evening that was hard to keep down. Fibropain kicked up. Calves tight and feet hurt. Forgot to do all 7 drops, only did 6 of Iberogast.                    10-26 level 10 migraine preceded by sparkly vision/loss. Worse pain I’ve had in months
10-31 IV with 6ccs of poly mba. Fatigue and brain fog all day. Did have a small burst of energy early evening.
11-1 drove to Bend! Some disassociation and migraine flared late afternoon
11-2 disassociation and fatigue all day. Fibro flared awful in hands all morning/afternoon.
11-3 upped Iberogast to 8 drops/day                                                                                             

11-9 cycle started early am. traveled home, migraine flared in early evening but one clonidine calmed it down                                                                                 

 11-10 fatigue and achy all day. Took 2 clonidine and detox bath that helped for a few hours. migraine hit about a high 8

~also learned at one of my dr appts that my adrenals are WORN OUT.

*This was the most painful IV yet – with my fibromyalgia flaring in my elbows, she couldn’t get the catheter in. After half a dozen tries on my right arm, we went to my left and finally just put in the needle and put it on slow drip. Also did poly mba at the end – 6 cc’s of it. *

Migraines: Like I said, one level 10 migraine but overall they have stuck to the normal level 7/8 every day. Some days I’ve only needed one clonidine to keep the pain down.

Sleep: This has improved a little. I’m not needing the heating pad or blanket on every night. But the achy fibro makes it really hard to sleep.

Memory/Disassociation: Possible improvement in memory. Definitely some disassociation while on vacation. Sometimes just over-stimulation.

Vision: Once again, this only happened once this month!!

Fibromyalgia: This had settled in my elbows and would flare in my pinky and ring fingers sending tingles up my arm. I am able to hold things (crochet, phone, steering wheel, etc) for longer periods of time without it cramping. It did flare so bad in my hands one day that I couldn’t really pick up/carry anything. By the next day it wasn’t as severe but it was so frustrating and painful. Since then, it has flared more than it was but the last few days it’s been lessening. Left calf still self-cramps and shooting pains in my feet are more frequent.

TMJ: While it doesn’t pop all the time, this is a constant pain now. The front of my neck has started hurting frequently as well. My teeth ache and often I can feel the nerves pulsing from my jaw up to my temples. Ouch.

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Celebrating feeling well enough to make some delicious snacks while on vacation!

Fatigue: This eased off and on – probably thanks to the IV. It has still been intense – to where walking across the room is exhausting – but not as consistently bad as last month.

Weight Loss: I honestly haven’t weighed since the beginning of the month, so I really don’t know how this has gone.

Mood: This has improved a little bit more. My inward negativity goes in waves, but it’s better than it being constant. I’m sure that being able to get things done around the house helps with this.

Bladder: This has, once again, been a main struggle this month. Waking about 3 times a night – frequent trips – suddenly urgent trips. ugh.

~Laura

How have you been feeling this month? 

 

 

Health Update Sept/Oct 2017

12 Oct

Whew, finally getting this written! I’m gonna give myself a little plug here before I get started.

If you want more consistent updates on how I’m doing, follow me over on Instagram! I’m on there regularly, sharing how I’m doing with dosage increases, doctor visits and whatever else hits me as I fight to get better! (plus, there’s super cute puppy pictures too)

fightinglymemigraines

Overall Health: While fatigue has been less INTENSE, it is still very present, making it one of my main struggles of the month. Dealing with reaction to Iberogast. Not getting good/enough sleep. Bladder issues.

9-12 IV today. Brain fog but ‘compelled to DO’ today. Drove down to Bend on my own! Days away from cycle
9-14 fatigue day. Migraine kicked up. Bit of brain fog. 
9-15 worse fatigue today. Level 9 migraine in evening. 
9-19 upped Iberogast to 2 drops/day. Felt bad in afternoon and awful in evening. Migraine. Jaw. Achy. Etc. 
9-20 same reaction this aft at yest. But not quite as intense perhaps? 
9-22 putting Iberogast in warm water rather than hot tea. Seeing if this helps my reaction/detox to it. Yesterday’s fatigue was intense. Back hurt in evening
9-27 aft. sparkly vision. Severe migraine and fatigue rest of day
9-28 migraine and fatigue hit in afternoon
10-1 fatigue lingered today, able to get out though. Napped in afternoon. Migraine kept down with 2 clonidine. Upped Iberogast to 4drops/day in evening
10-3 IV today. Added poly mba at the end, along with glutathione. 
10-4 woke up achy and tired but had a burst of energy rest of morning. Migraine kicking in early afternoon. Severe migraine and bad fibromyalgia in evening. Rough night.
10-5 woke up rough and weak. 
10-6 woke up pretty good. Tired but ended up with a lot of energy most of the day, despite brain fog. Migraine and fibropain kicking in mid evening. Can’t seem to stop it. 

10-9 upped Iberogast to 5 drops/day
10-10 fatigue and just feeling overall awful this am. Want to get things done but just can’t…. So tired. Woke up with migraine. After a few hrs was able to get up and DO. migraine flared off and on all day. Only flared a bit in evening.

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Migraines: I have done better keeping track of these on my migraine app. Still a little wonky so I can’t use all of the feedback from it but here are a few. These have been averaging at a level 9. Aura and Prodrome are : headache, muscle stiffness and tingling in head. Triggers seem to be: body aches, interrupted sleep and lack of sleep. Top 3 symptoms are neck pain, fatigue and jaw pain. They typically start in the temples, eyes, jaw and base of skull. Most days I can get the pain down to where I can function – and get things done.

~ an ice pack has been my go-to lately. laying on it, or having it on my forehead helps so much.

 

Sleep: This has been a big struggle for me. Falling and staying asleep is so hard. I always sleep with my heating pad under my neck.

Memory/Disassociation: At times I feel like my memory is getting better but I don’t think it is. (no joke intended there, hehe) I will say that I have’t dealt with disassociation this month. Over-stimulation, yes. Frequently.

Vision: This has only happened once this month. I am so relieved about this!

Fibromyalgia: It has reached drive-me-insane level a few times this month. Augh. My joints regularly hurt – especially my elbows. And that often spreads tingles to my pinkies and ring fingers. It is just about guaranteed to happen if I’m holding something (phone, book, crochet, steering wheel etc) for a long time. (this has improved a bit from last month!) Ice, advil and light massaging help. The self-cramping that my left calf does and the ripples of pain that shoot along the bottoms of my feet still happen. But my hands aren’t self-cramping as bad although I do have to stretch my fingers out often because they just HURT.

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~Pain and anxiety go hand in hand.~ The last few days I’ve felt a restlessness to be HEALTHY, to be WHOLE. To be past this struggle. I feel as if parts of me are dying, withering away under all of this stress, physically and emotionally. I’m impatient to move on with my life. But I remind myself that my main goal needs to be to keep my eyes on Him – the One who is my Refuge and Strength. No matter what earthly trial I am in, He alone is my Salvation, my Rock. As long as I keep my eyes on Him and ask that my will ever is aligned with His, I will have lived a good and full life.

TMJ – This has been popping/hurting a lot still and I’m thinking it’s because I haven’t been to the bodywork dr in months. My teeth ache quite frequently from the stress of me clenching/grinding them at night.

Fatigue: As I said above, this is one of my main complaints from this month. The deep-seated fatigue that just aches and drags me down. I still am compelled to get up and DO things but sometimes the two opposites are at war with each other. Some mornings I am stuck on the couch but then can get up in the afternoon. I want to make a distinction – before it would be so bad that it was hard for me to stay upright in a chair, and I mean, really hard.  Now though, while it is still difficult, I rarely am struggling to stay in it rather than feeling like a cartoon where the character just melts off the seat into a puddle. So, while the fatigue is still bad, it’s not where it used to be.

Weight Loss: I have come out even this month – losing and then gaining it back. I’m a little bit frustrated but I have been less strict on my diet, so….. (by that I mean that I’ve had starch here and there)

Mood: This has improved…sort of. My inward negativity goes in waves, but it’s better than it being constant. I’m sure that being able to get things done around the house helps with this.

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IV time again – Hallelujah! Lovely nutrients with gluithione at the end. We’re also going to try a bit of poly (can’t remember the full name right now) at the end as well to see how I do with it. Was able to have a good talk with the Dr about next possible steps, with some suggestions for tests before the end of the year. Brain fog and fatigue are hitting hard today.

Bladder: This is the other main struggle this month. I can’t get back to how my digestion/bladder were a few months ago. (is it really that long ago?) Even when I was cutting out ALL processed and starch. I am waking up typically 3 times a night to go to the bathroom, even when I don’t really need to.

~I wanted to do a quick update of my progress from this time last year. I’ll try to keep it short. I still struggle with many of these same symptoms as well as have added quite a few. (oh joy). But I have more energy overall. And we’ve figured out more of what’s going on with my body to combat it!

What I’m currently taking:

1 each day of  A, B complex, Calcium, Chaste Tree Berry

2 each day of Ashwagandha, B2, Berberine, Butterbur, D3, E, Feverfew, Fibronol, Magnesium, Xiao Chai Hu Tang, Noni Fruit

3 a day St. John’s Wort

1 drop Ceanothus one day a week. 5 drops a day Iberogast (slowly upping)

on Days 15-28, 1 Horse Chestnut Extract and 2 Chaste Tree Berry

Clonidine – prescription pain pills. Averaging 2 a day

Gelsimium, Pulsatilla, Belladonna, phosphorus and one more… – tincture in water that I take when I need relief

essential oils

~Several of these I need to increase, but I’m focusing solely on the Iberogast right now.

I know this was long this month but I wanted to get it all in!

How have you been this month? Do you have any questions for me about what I’m taking/doing? Ask away!

~Laura

Health Update : July/Aug 2017

15 Aug

It’s interesting to go through the past few health updates each time I write a new one to see how I’ve progressed/regressed. It is so easy to just see the mountain you’re climbing that you forget how far you’ve already climbed! The struggle with this battle is that there’s dips and valleys and straight-up peaks that I’ve got to get through and over. Some days I don’t feel up for the challenge but right now, I’m ready for it. I will one day be healthy enough to have the homestead I dream of. I will.

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Overall Health: I have had some LOW lows and some pretty good highs this past four weeks. But, the lows don’t seem to be lasting quite as long as they used to. I even have gotten out for some fun a few weekends.

Notes: 7-7 teeth are aching. migraine. Fatigue all day. Need to take a bath but it’s just too much. Fibropain is kicking up late in evening
7-8 fibropain is in arms, not severe just.. There. Migraine trying to kick in. Tired but can’t sleep
7-9 fatigue and migraine all day. fibromyalgia flaring bad this evening can’t sleep
7-13 fatigue not quite as intense. Fibropain flared in left hand and in calves. Migraine came in evening. 
7-18 slight pain over heart. Fatigue. Migraine trying to kick up -able to be out and about for @6hrs. Back and feet hurt after
7-19 started liver ‘pill’ trial. Went out for a few hrs, migraine kicking up early afternoon. Fatigue and migraine even after 2hr nap. 
7-21 woke up with bad fatigue and migraine. Had to stay home all day. Took two naps, over an HR each, didn’t help with fatigue. Going to bed with level 8 migraine and exhausted. Some fibropain today too. Days away from monthly
7-23 (yesterday i felt pretty good) migraine, nausea and fatigue today. Took a 2 hr nap. Woke up dehydrated, as usual. Brain foggy. 
7-24 afternoon/evening severe (level 9?) migraine. Fibropain flared but not severe. 
7-26 level 10 migraine. Vision was funny off and on all day. Got sparkles in left eye around 4pm. 
7-27 starting fibronol again
8-1 IV today. Woke up shaky, weak and migraine. Severe migraine in evening
8-2 woke up with migraine. Got it calmed enough to sand chair for half an hour
8-3 upped fibronol to 2a day
8-5 another vision loss migraine. Pain didn’t stay severe as long. Nausea. (had gone to see movie in a theatre)
8-7 started Lightning Pearls. Felt pretty good today, migraine kicked up early aft.

8-12/13 felt good overall. so days 21/22 of cycle. still took a few clonidine each day

8-14 worked out for half an hr. upped lighting pearls to 2 a day.

We added glutathione to the end of my IV this last time. The IV’s help so much in reducing my symptoms that I’m excited to add more helps to them.

Sleep: I ran out of Theanine so I was taking melatonin almost every night to help me get to sleep and boy, oh boy, that’s never a good idea. I finally figured that even with how poorly I sleep on my own, at least I wouldn’t be having the nightmares that regular melatonin brings. Thankfully my new bottle of Theanine arrived the other day

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my ‘you don’t always have to be thankful it’s not worse’ face

Memory/Disassociation : These are both unchanged I believe. Although this past Sunday we were out and about all morning and I did very well.

Vision: Along with getting level 10 migraines more frequently, my vision has been ….funky. When those severe ones hit, I’ll lose the sight in my left eye. Thankfully, we have figured out the treatment to get the pain down quickly (or even avoid the severity altogether) as I used to lose sight for half an hr. And then the pain would swoop in about 20 minutes later and last HOURS. So I’m glad we’ve figured out part of it. But now I’m noticing just… irregularities with my sight sometimes. Trying to read – computer or printed page – can be nauseating and the light/words seem to move.

Dizziness:  This has only been present a few times

Fibromyalgia: While I will feel discomfort/tenseness in my calves and writsts/arms, and occasionally shooting pains, the drive-me-insane levels haven’t come back this month. I am curious if this is the fibronol doing its thing. Ice and advil and heat are still my friends for this

Fatigue: This has been back and forth. It will knock me out flat for days at a time and then be on the back burner. I’ve noticed that sometimes getting up and doing something for a few minutes helps ease it

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I now need this shirt

Weight Loss: I haven’t been as consistently strict on my eating this past four weeks which means I haven’t done as well at losing weight.

Mood: Still no major mood swings but it’s still been a struggle. Getting frustrated easily, or just having negative thoughts a lot would throw me all off balance. It has been better the past several days though

Bladder: This had been marginally better but not anymore.

~In an effort to focus on the things that I can do, here’s a few things that I’m currently thankful for : I’m able to make dinner almost every night. I’m now able to drive myself to my doctor appointments. I’m also able to run errands on my own. My attention span has been a little bit better.

~On the flip side, little irritants : the floaters in my eyes lately are driving me crazy. my hands instinctively curl up/tense, which hurts. If I sleep at all without my night guard, I pay for it. severely.

I feel like we’ve made a few strides forward this month and I’m just praying it continues

How have you been this month? 

~Laura

 

 

 

Encouragement for living with Chronic Pain Part 4

10 Aug

Hello friends! I hope you’re having a wonderful day. I’ve been sharing a series of posts filled with articles on living with – and being a supporter and encourager  of someone with – chronic pain.

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Facebook posts we all want to share but don’t  by themighty.com

 

Why is Pacing Important? by My Eds Journey

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How Chronic Illness makes you awesome by Chronic Mom

Coping Skills to Manage the Emotional Stress by Life in Slow Motion

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Facing Suffering that lasts longer than a Season by Life in Slow Motion

Symptoms of my Lyme Disease by SGL

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~Laura

Do you have any encouraging posts to share? 

The Dark before the Dawn

13 Apr

I’m sitting up at 1:30 am exhausted, knees bouncing and eyes blurry. I’m exhausted. Yet unable to sleep because of the nerve pain throughout my body. This is a relatively new symptom and I’m sick of it already. It seems to be present when my migraine is minimal/absent. And while I am so very thankful that the migraines seemed to have eased slightly, I’m not too crazy about what’s replacing them. Do I want the migraine back to what it was before? no. no thank you and good night. But, that’s not really a choice I get to make anyway. So. Here I sit, the house silent and dark but for the diffuser I set to going and the one light on behind me.

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I’ve been thinking about pain a lot lately. It is, after all, my one constant companion  – aside from Abby who wants to follow my every movement – so these are some of my thoughts:

Pain is isolating, my friends. No matter how hard I try to not let it – it does. It pulls you from the world that’s spinning and moving and progressing and puts you in a sort of vortex. Where time speeds up and then seems to stop. Where one breath is agony yet days disappear in a haze.

Pain is deceptive. It doesn’t have to show itself on people’s faces or in their limbs to be felt – to be excruciating. I look as healthy as the next person but ask me to walk up a flight of stairs, carry something heavy or just walk around for several hours and …. well, it’s not gonna happen easily.

Pain is….hidden. The constant refrain of ‘i don’t feel well’ , ‘I have a migraine’ , ‘i’m exhausted’ , gets wearying after a while. So. You stop saying it. But then you find that you’re covering how you really feel. And ignoring new – and painful – symptoms. And then one day your doctor mentions that you seem to be doing better and you have to stop a moment and admit the truth – you’re hiding it. From your doctor. The very last person you should be hiding it from.

Pain messes with your brain. Do you really have a new symptom or are you just tired? Is the difficulty in typing stem from the fact that  you impaled your thumb or that some of your brain-to-fingers skills are dulling? Are your eyes blurry because you’re tired or something more malicious? What about these aches/nerves on fire – are you on the road to more neurological problems or is it just some herxing going on?

~Seriously, you can’t decide what’s legitimate or not. ~

 

~glorious day, I just realized I’m no longer having to bounce my legs to ease the pain. I think I’m gonna go crawl back in bed under my electric throw (the only thing that truly eases these) and see if I can sleep. To be continued….~

I’m actually going to end this here. It’s been a few days since I wrote the above and I just want to add that one day, however far or near, this pain will end. jer3017

~Laura

Health Update – March 2017

29 Mar

 

What a month! Spring is starting to show up here and we are so very ready for it. I’m dreaming of a small container garden and getting the landlord here to spruce up this yard of ours (he’s also a landscaper.) This time last year I had roses on my bush, it’s definitely a delayed spring!

Well, on to the topic of fighting this Lyme disease.

fightinglymemigraines

Migraine app notes – I’ve had 7 attacks, lasting in average of 72 hours. So, while they’ve absolutely been lasting longer, I’ve had 6 attack-free days. Which I believe is a record! I’ve been getting an average of 7 hrs of sleep each night – this doesn’t typically account for the getting up a few times and tossing and turning. I’ve taken 38 Clonidine. They happen 80% of the time between 12pm and 12am (ha! so helpful,that). Average level is 7.9. Top three auras/prodrome are fatigue/achiness, headache and weakness. Top three triggers are neck pain, interrupted sleep and lack of sleep. Top three symptoms are jaw pain, neck pain and throbbing pain. Frequent start positions are the same as usual, temples, eyes, jaw and base of neck.

( Comparing to last month, I added one attack-free day and the pain increased slightly while the duration rocketed up.)

Overall Health/ Treatment: Some days I feel like I’m starting to do better – and then the little evil bugs laugh and do a stealth attack. I’ve had a few symptoms ease/disappear which is wonderful. I’m going to keep my notes from this month instead of re-typing them. =)

3/18 note  – started taking iron again today – at 5 ml 2x a day to get used to it. am continuing taking antibiotic (doxycycline) for another 2-4 weeks to see if it helps or not. started a probiotic ( sacro-b) what with taking the antibiotic longer.  went off of: garlic, ehb, epo. Finishing my bottle of Silver, then going off it too. dr suggested i start having bone broth. she also wants me to do a metal toxicity test, i’ll do it after i get back from bend next week. since we aren’t making any headway with what we’ve been trying, she wants to go a different track. Dr also wants me to start taking butterbur. need to start taking the xiao chai hu tang again.  –pain has been awful these past two weeks, plus i got sick and then started my cycle a few days after getting over the cold. migraines hit hard in evening and sometimes i wake up with them in am. have lost 1.6 lbs last two weeks.

3-24 – started back up on doxycycline on the 20th. As well as the sacro-b. Upped my iron to 15ml a day on the 22nd. Taking phosphorus 1-2x a day. Needing melatonin to sleep still. Pain is definitely worse in evenings. Still daily migraines, tmj and calf/feet tenseness and a bit of cramping. Migraine seems to ease a bit more quickly the past few days. Skin is clearing up again, hopeful it’s the antibiotics and it’ll stay clear. Able to focus again, have even been writing.

3-29- ceanothus – trying 3 drops am, 2 drops aft, 1 drop  eve to see if it helps with the evening migraine and fatigue. have gained back the weight I’d lost.

Migraines: They have increased in intensity without hitting 10 at all, I don’t think! that’s cause for celebration, folks. This past week-ish they seem to respond to treatments a bit better. The rest of the month, they were resistant to everything.

Digestion/TMJ: Once again, my digestion is off. Looking forward to stocking the house with healthy options and see if I can get it to calm down again. TMJ… I’ve been clenching/grinding so much lately that my teeth hurt most of the time. The jaw pain is normal now. Finally rescheduled my appointment with the ‘jaw doctor’ as I’ve labeled her, since I had to cancel my last  appt when I was sick. (anyone else find that statement ironic, ‘when I was sick’?)

Sleep: I’ve been needing Theanine or Melatonin to get to – and stay – asleep. It’s frustrating since I was able to get off of it for a while. BUT! The night sweats have gone away.

Memory/Brain Fog: Brain fuzziness (a step down from fog??) reappeared while I was in Bend. Over-stimulation perhaps? It was strongest on my birthday, sadly. Gives one the sense of not being present. I’m hoping this eases soon.

Vision: My eyes still frequently get blurry, or just take a bit longer to focus than they should. It hasn’t progressed though.

Feet/Leg cramps: The cramps are random and maybe once a week now. Typically it’s just tenseness – which can be distracting and painful on their own. Sometimes soaking them in epsom salt helps.

Dizziness: This got worse recently, but I haven’t been watching my salt intake.

Joint Pain: This has mostly shifted to my knees/ankles. I’m so thankful that it has left my fingers – that was the worst for me.

Fatigue: This is still a struggle. Like I said above, I’m gonna try taking 1 drop of Ceanothus  to see if it helps.

~I have started following some fellow lyme disease sufferers/warriors on Instagram and in talking with one of them the other day, I learned that ‘they’ have recently learned that you can get Lyme, not just from ticks, but from other nasties like mosquitos, fleas and spiders. SPIDERS, people. I’ve been thinking back on my symptoms lately and kept getting stuck on the timeline of when I was in Culinary school and got a rather awful spider bite on my cheekbone. It swelled up so bad that it impaired my vision. Now, I grew up in an older house and got bit all the time so I didn’t think anything of it. But now…. It doesn’t really help much, other than to mentally be able to put more of a year on it. By then, I’d had migraines for a few years but after that… everything started to crash. Literally.

That’s all for today folks, I’m gonna rest and then – hopefully – get out to go grocery shopping!

Happy Wednesday,

Laura

 

Health Update – 9/23/2016

23 Sep

How in the world can September already be almost over?! Although, the coming of all things pumpkin and fall does help ease the shock of it 😉

 

fghtnglyme92316

Overall Health: since getting back on the majority of my vitamins/supplements I’ve been better – comparably. For about a week I was stuck on the couch due to unbelievable weakness and exhaustion. I haven’t been quite so negative. I haven’t had to nap so often lately, but sleeping at night has been really rough. I’ve been able to walk the dogs a few times a week, which benefits all 3 of us.

Treatment: I went in to my doctor the beginning of this week and we changed up what I’ve been taking, and she sent me home with several new things to start! I am currently off the Xiao Chai Hu Tang (possibly the cause of my extreme exhaustion last week) and have started taking Silver. (yes, silver! apparently while it’s very gentle on you, it kills things, who knew?) Tomorrow I start taking EHB, then if I don’t react negatively to that, 3 days later I start Garlic pills (oh joy). 3 days later, Vitamin E and then, you guessed it, 3 days after that, Copper pills. She’s also told me to start drinking 1 TB Apple Cider Vinegar in the mornings.

Migraines: Killer. They have been going from a 5 to an 8 (or higher) in the blink of an eye, making thinking (and anything else really) incredibly difficult.

Digestion and TMJ: Neither have changed here-which means they aren’t that good… but while my jaw has been hurting a lot, it doesn’t pop as much as it used to! Silver lining right there!

Mood: It’s been better overall this past month, thank goodness. I feel like I mostly am back to myself although I do still feel a tad anti-social

Sleep: Except for the past few nights, it’s been atrocious. Of course, the nights I do sleep better I have nightmares..sigh.

Memory: Once again, it hasn’t improved but aside from freaking out late one night because I couldn’t remember words to songs that I’ve known for ages, I haven’t noticed any worsening.

Daily Vitamins:

Clonidine – for most of this month I was taking 3 a day but since Sunday it’s backed off to 1 or 2 !!!!!

off the Xiao Chai Hu Tang

Pulsatilla and Belladonna – finally got some more of these amazing tinctures!!!

Here’s a full list  – although I will have to update this next month!

Stick around and check out my other health updates!

8/23/16

Symptoms of my Lyme

7/27/16

Fighting Lyme and Migraines

The Big Health Update

 

Next week is the monthly Book Review, come back and check it out!

Have a fabulous Fall weekend,

Laura

 

 

 

Fighting Lyme and Chronic Migraines

8 Jul

well, these two weeks have FLOWN by and now it’s time to update on how fabulously I’ve been feeling. Ha! Not fabulous, let me tell you that first off. Oy. But we were able to have a lot of fun over the 4th of July weekend! Thank you to everyone that came to our first BBQ! It was SO much fun and we had such a great turnout! OH (other half) and I look forward to hosting another one. We also got down to Bend to see family and friends for a few days and had an absolute blast. Family barbeque where the kids just couldn’t get any cuter. Abby learning to swim in the pond. Holding a sweet little baby. Line dancing at midnight. Dinner with my parents and Auntie and Uncle.  The fun continued right until we left!

 

Ok, I’ll quit playing with pictures and get to the update…. if you missed the first update, check it out!!

fghtinglyme

Overall Health: I seem to feel either really good or really awful, there hasn’t been much of an in between these last few weeks. My memory hasn’t improved, which makes remembering to take the treatment hard! Sleep hasn’t improved either. My skin has slowly started to clear up, thank heavens! The house is staying in pretty good shape , now I’m dreaming of working in the yard and cleaning my car!

Treatment: I’ve been back on the Samento for 10 days now and good grief, it’d be nice if I could remember to take all 3 drops each day. I’m doing good if I take 2. I’m thinking I’m gonna have to set alarms on my phone… Remember, I have to wait half an hr after taking it , to eat. AHEM. Not cool, because I tend to remember when I’m sitting down to eat. sigh. I Will get the hang of this because I’m not reacting near as strong as before. I have run out of Riboflavin though, so I’ve Got to get some today, remind me of that will you? hehe.

Migraines: This might be TMI for some of you reading this and I’m sorry… Due to it being that wonderful time of the month, my migraines have been predictably severe. This morning I don’t have one but that hasn’t been the norm the past week and a half. The pain has been severe, and stayed so most of the day this past week especially.

Digestion: This past week I seem to have gotten past my stomach freaking out at almost every meal I eat. Which is a wonderful change.

TMJ: I don’t seem to be clenching my jaw during the day as much – at least I haven’t caught myself doing it like I was. It’s been popping more the last few days, and is super tender in the mornings. Hard to chew harder foods sometimes.

Mood: I feel more myself although I still tend to overreact to the littlest things.

Sleep: hasn’t changed at all – still have to take Melatonin or Theanine every night. Still wake up at least twice. I’ve been taking a  lot more naps since I got back on the Samento.

Brain Fog/Memory : Fog hasn’t been as bad as in the past but memory is deplorable. I’m still struggling to remember things I’ve always known, and to find the right word. Still haven’t been able to write much on my novel. Focus has been a little better in some situations, (able to watch movies now)

Daily Vitamins :

Still averaging 2 Clonidine a day (it’s been 3 a day these past several days though)

I’ve been trying to up my intake of Fish oil to 2 a day without reaction.

I’ve run out of Riboflavin, getting more today! Need to up my intake though

Seem to be doing fine off the Cordyceps

And that’s it! I’m gonna start working on the list of symptoms, I want to get it up before I go on vacation next week. This blog has wonderful info on Lyme disease, I’ve been following her for a few years now.

Do you have any tips on remembering to take the Samento? Or do you have direct experience with Samento? I’d love any advice!

Thanks for stopping by!

~Laura

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