Health Update Aug/Sept 2017

12 Sep

I can’t believe it’s really time to do another health update but this is the first one in a long while that I’m excited to share! I’ve seen baby steps of forward movement in this long healing journey of mine. I will probably end up steps back again in the weeks to come but for now I’m relishing the mini victories. One of them being that I have been just well enough that I’m planning on making the 3 hr drive to visit family and meet my newest nephew! This is HUGE for me, and although there’s a decent level of anxiety about actually being able to do it – I cannot wait any longer to meet little Joseph. ( This little guy makes 18 (!!) nieces and nephews).

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Overall Health: I feel like I’ve had extremes this month. I’m either feeling really well or really awful. I am able to see some improvement, though vision loss is a regular thing now.

Dr. Thoughts: She is thinking that I might have SIBO (small intestine bacteria overgrowth) so I am currently taking berberine and iberogast for it. She knows of a new test that is being developed for Lyme that I might be able to have done for free as part of the… what’s it called? Research? (hello Lyme brain right in the middle of a post…) Which would be so great to try and get even more answers.

8-16 started bacteriaphage, awful nausea. 
8-17 woke up with level 8 migraine. Didn’t go down much all day. Fatigue. Not as much nausea from phage
8-18 feel pretty good today. Getting stuff done around the house even. 
8-21 some nausea this am. A little tired but doing good! Yesterday was last day of bacteriophage. 
8-22 IV today. Tired but did good til evening, as usual. Migraine flared. 
8-23 fatigue in am, then mild nausea as well in the afternoon. Ears sensitive. 
8-24 upped lightning pearls to 3/day
8-26 last few days, fibropain has started flaring. 
8-27 slight spasms of fibropain. Pinky and ring fingers been tingly last few days. started berberine. 
8-30 past few days, teeth have been hurting. Jaw worse than normal. Today fibropain in elbows and wrists. Pinky and ring finger on left hand have been tingling all day. Most likely from sanding the other day. Fatigue and achy stronger than it’s been. 
8-31 vision blurry and sparkly early afternoon. Slept 2hrs. Migraine flared to a 9 in evening. Weak. Achy. Migraine down to an 8 now. Day 14.
9-2 feels like another vision loss day coming… 
9-4 started iberogast. 9 drops/day. 
9-5 rough day. Fought off losing vision but migraine high and body weak.                                 9- 9 dropped iberogast down to 1 drop/day, reacting too strongly to it. mild tingling and cramping in same places as on the 30th. 

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Migraines:  There has been some improvement. Mostly during the day. I’m able to -at the least- keep the level down, more easily these days. They still flare up intensely in the evenings. As well as if I’m around anything LOUD or overly BRIGHT (making it difficult to sit through service or a movie, or spend much time in any sort of store…)

~I am doing better keeping track of my migraine on the app on my phone, but not good enough to be able to use the information from it. I miss having that info, so I’m really trying to remember to take the time to do it.

Sleep: I’m still cycling Theanine and Melatonin most nights but even with them, I’m waking up several times and only asleep for just about 7 hours.

Memory/Disassociation: I am seeing sporadic improvement in getting over-stimulated, and not disassociating quite as often although it’s still frequent. I find that I am more and more reluctant to leave my house because of it. I’m not sure if there’s been any change in my memory. Oy.

Vision: I now partially lose – or almost lose- the vision in my left eye about twice a week. Often I am able to keep the following level 10 migraine to a short one, or avoid it altogether. While I’m thankful for that, it’s still very frustrating to have this vision issue so frequent. The feeling that comes with it is awful and the fear/anxiety is terrible.

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Nutrient IV and a great read – Jane Eyre

Dizziness: I almost feel like I could take this one off the list for now. I don’t get dizzy very often anymore

Fibromyalgia: For a second month in a row, the drive-me-insane level of pain hasn’t come. But it’s been just under that several times — where i’m bouncing my leg or such because it hurts too bad to be completely still but it hurts too bad to get off the couch and actually move. Oof da. My joints regularly hurt – especially my elbows. And that often spreads tingles to my pinkies and ring fingers. It is just about guaranteed to happen if I’m holding something (phone, book, crochet, steering wheel etc) for a few minutes or longer. Ice, advil and light massaging help. My hands still curl up and feel as if my fingers are tensing on the inside – as well as the self-cramping that my left calf does and the ripples of pain that shoot along the bottoms of my feet.

TMJ – This has been popping/hurting more frequently again and I’m really thinking it’s because I haven’t been to the bodywork dr in months. My teeth ache quite frequently from the stress of me clenching/grinding them at night.

Fatigue: I’ve noticed something interesting this past month – Most mornings I am almost…compelled to get up and DO. Clean. Take the dogs to the park. Prep dinner. etc. I just have to be UP and doing something. Even when I know I need to stop and relax, its like I can’t… and I’m not sure why. I haven’t had a lot of awful fatigue, it’s been mostly a level 6 on a scale of 1 -10.

Weight loss: I have been a little bit stricter this month on what I eat, which means I’ve lost about 2 lbs this month. I’m pleased with that because it’s really hard for me to lose weight.

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I fit into these slacks for the first time in months!

Mood: I don’t feel that this has changed much. I still get frustrated easily, and have more negative thoughts than normal.

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Bladder: I just realized that I haven’t mentioned the fact that I tried a new 5-day treatment specifically for the Ecoli strain in my gut – it was bacteriophage. (I mentioned this in my Instagram). For that week-ish, my digestion was better, as well as any bm’s. (i’m trying not to be too tmi here, but digestion issues are common in those dealing with Lyme). Since then, it’s been a bit more touch-and-go, which is frustrating.

Next month I think I’ll do an update of everything I’m taking, as well as compare to where I  was this time last year. (It’s been just over a year since I got a diagnosis). But for now, I’ll close with a question:

Are you seeing any forward movement in your dreams? (be they health, career, hobby, etc related)? 

~Laura

Also, Abby Pond turned two at the beginning of the month and (thanks to google photos) I made this video!

the dreaded to-do list

8 Sep

This is not a topic that is relegated only to those that deal with chronic illness – rather this is something that I believe, touches us all in fits and bursts, throughout our lives. For me, it’s because of my health problems. Before I share with you what this struggle is, I want to point something out.

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I’ve noticed that it’s very difficult to verbalize this struggle with others because the first question one is asked is, “Are you depressed?” I am honestly so frustrated over getting asked that. I feel like they are missing everything I am saying and going right to something that they feel they can then ‘fix’ or whatnot. I’m really not sure why this seems to be the main reaction.

So. Don’t react like that, and I’ll share with you.

I’m overwhelmed and tired of struggling to keep up. Everything that needs doing, or things I want to do, rushes up to me sometimes and I. Just. Can’t.

And I mean that literally. I physically can’t. I mentally can’t.

I’ve noticed that if I get overwhelmed, my brain just shuts down. It retreats so fast that I don’t even realize it’s happening until I’m cocooned.

It hurts to walk so often these days – and if I walk a lot, my fibromyalgia flares in the evenings. I can write or crochet but only for a while or, you guessed it, my fibromyalgia flares. Cleaning the house is not only exhausting but it never stinking ends. (this one I know we all can identify with.)  To be fair, I like a tidy house, comfortable to live in but not messy. I can ignore things for a few days  but then I see it and it gnaws on me.

This list could go on, but as I said before, I know everyone feels this way from time to time – completely overwhelmed with their To-Do List. We all want to throw up our hands and say ‘I give up’ and leave the list – and all the messes – on their own.

So, let’s give ourselves permission to do just that. To leave them alone just long enough to pull back together the tattered edges of ourselves so we can get back to it with motivation. To deny the guilt that rises from taking some time for ourselves and ignoring those five loads of laundry and the entire house that needs vacuuming.  To realize that while the list will always be there, it doesn’t need to rule us.

~Laura

 

Monthly Goals Link-Up: Sept 2017

5 Sep

I can’t quite believe it yet, but we’re into September folks. Which means, for our household, we are only a few weeks away from the High Holy Days and OH starting up classes again at OIT. Bless me, but I’m not ready to have him gone a few nights a week again! He’s done with this degree come the end of winter term though, so I know I will survive! (plus, I’m not the one stuck doing homework all hours of the night.)

It’s staying hot here though, and my OH just stuck his head in the door to tell me that ash is falling. ASH. From the 15 or so forest fires that are burning this state up.

I’m looking forward to cooler weather – before the rains come – when I can step outside without getting hit with heat and humidity. Humidity just sucks any sort of feeling-slightly-human right out of me.

Anyway, August went by quickly, as I knew it would with all the things we had planned. Although, some were cancelled because both dogs have been fighting hot spots for about two months now and they just can’t go out in public when they’ve got open, raw sores. Poor things.

As for my goal list this month, I did pretty well. I’m pleased with what I was able to get done -even if it wasn’t on this list. Like travel 3 hrs to Bend, sit through a fantastic performance of Willy Wonka, then go on to hang out with friends and family the rest of the day without totally and completely crashing like I thought I was going to.

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Photo by Melissa Askew on Unsplash

Recap of Monthly Goals:

Integrate new scene into ‘Amelia’ – I’ve only worked on this a little bit.

Post Regularly 

Lose weight/work toward health – for more info, check out Health Update : July/Aug 2017

Read more books on Jewish living –  Neither are Jewish, but I’m reading Boundaries by Dr. Henry Cloud and Dr. John Townsend and The Power of a Praying Wife by Stormie OMartian.

Write a letter to one person a month  – 

Try a new recipe – I made a recipe from my Eating Clean cookbook – No-Eggplant Garden Herb Ratatouille. It was good but I over-cooked the veggies, resulting in what felt like a stir-fry. I also made 2 recipes  from Against All Grain’s Meals Made Simple, Peruvian Style Chicken and Chicken Verde. Both were good but I think I liked the Peruvian Style best.

Watch/Read a documentary/biography – I watched Bear Family and Me by Gordon Buchanan. (I’m really going to be bummed when I watch all of his shows!)

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In the midst of a serious discussion

Recap of August Goals:

Finish Detox – I mostly did this. I detoxed for 12 days when I was shooting for 14.

Sand Adirondack Chair – Due to my Fibromyalgia, I am not able to do this as often as I would like. I did work on it a few times this month though.

Apply for Disability – GAH. This is the biggest frustration of August. Long story that’s still not finished.

Do Lil Laura’s Scrapbook of their visit – ha. so I had to order the pictures printed twice…. I am currently waiting for them to arrive so I can scrapbook them!

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A smoky view of Mt. Hood

September Goals:

Finish Adirondack Chair before the rains come

Work on Disability

Scrapbook Laura’s visit

Deep Clean bedroom

I’ve just decided that I want to write down at least one thing that I didn’t think I’d be able to do. Even if it’s ‘walk the dogs’ – ‘go grocery shopping’ – ‘make it through doctor appointment’ —etc. I want a visible reminder that, even if it wasn’t on this goals list, I accomplished something I wasn’t sure my body would let me do. (I’ll admit to thinking that finishing the adirondack chair will be this months)

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The indignity of wearing the “Cone of Shame”

Linking up with Stay Gold Autumn again for the link up!

~How was your August? Are you ready to switch gears from summer to school and fall?

~Laura

Book Review – August 2017

1 Sep

I’m so proud of myself for getting this up today, I really wasn’t sure if I was going to! I feel like I should get a gold star. Kidding, just kidding. There’s quite an array of genres this month, so hopefully you find something to add to your to-read list!

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Anathema by Colleen Coble – In the peaceful Amish community in Indiana, Hannah harbors a secret. She has an English beau that she sneaks out to be with. But one night, while she’s gone, her parents are brutally murdered. The entire community is shocked but encourage Hannah to forgive the killer. Instead, she runs away with her English beau, Reese. When circumstances force her to return to the community, can Hannah find forgiveness and a place to call home once again?

~I’ve read many Amish-based novels over the years so when I heard this one was really good but very different, I was kind of skeptical. I mean, how different can you get? Well. Coble did it. This is a tear-your-heart-out story that you are so glad you read. (as opposed to those that leave you dissatisfied and wishing you hadn’t ever heard of it much less read it). There is faith mentioned but it’s not as big a message as many of the Amish books I’ve read. This would get a four out of five stars from me for characters and story line, I enjoyed it that much. I would recommend this to anyone – although you might want to pre-read it before passing it to a young teen as there are some intense scenes.

Swiss Family Robinson by Johann David Wyss- The beloved tale of a Swiss family being shipwrecked on an island and using everything around them in order to survive and thrive for years. From taming wild animals to building a spinning wheel and drawbridges, the Robinson’s ingenuity and tenacity inspire readers of every generation.

~If you’ve been following SGL for a while, you’ll know that I started out listening to this story via Libravox sometime near the beginning of the year. I finally bought a copy so I could finish it. Thank goodness for Powell’s, feeding my book addiction. Anyway, while there was much described that I didn’t understand (names of animals for instance), it didn’t take away from my enjoyment of this story. I love the faith displayed as well. A great adventure story for just about any age.

Love Finds You in Sisters Oregon by Melody Carlson – It’s been over 10 years since Hope has been back to her hometown of Sisters, Or. And just as long since she saw her two sisters. But when her grandmother passes away, she can’t avoid them any longer. Her plan is to be there just long enough to attend the funeral and then she’s out of there. But then she finds out that she inherited Nona’s house and little dog. Not to mention a friendship with Nona’s handsome young attorney. In order to keep her inheritance, Hope is going to have to learn how to live among her sisters – who are none too happy about her inheriting everything.

~ The Love Finds You series is a large series and Carlson wrote a few of them – In Pendleton, Or, being one of them. This was a cute story overall – and it was fun knowing the places she was talking about. I  have to admit to being a bit disappointed with it though. The development of the characters seemed rushed at the end. I liked the parallels/comparison of the sisters to the Three Sisters (mountains) but the discord among them honestly got on my nerves. By the end of it, I liked it better than I did halfway through, if that helps! It was cute and it’s a good light, fun read overall though.

The English Garden Series – The Proposal and The Rescue by Lori Wick – Set in the early 1800s in England, this series has a delightful ‘Austen’ feel that I just love.

~I have read the first two and am waiting to read the rest! And then I will share a full series review with you. For now, suffice it to say that I enjoy this series every time I read it. 

I also shared three series reviews with you this month. Check them out if you missed them!

Series Review – Guardians of Childhood

Series Review: Mistborn Trilogy

Series Review: Seasons of the Heart

Currently Reading:

Jane Eyre by Charlotte Bronte

Boundaries by Dr. Henry Cloud and Dr. John Townsend

The Prayer of a Praying Wife by Stormie Omartian

Spindle’s End by Robin Mckinley

 

Once again, I’m linking up with the Reading Roundup! Click the picture below for some great book reviews!

Reading Roundup
Laura

Series Review – Guardians of Childhood

25 Aug

The Guardians of Childhood books by William Joyce are absolutely delightful. I got three of them from the library recently – The Man in the Moon, Sandman and Jack Frost. I was disappointed not to be able to get the others but these were so delightful. I got to read them to my ‘mini me’ while she was visiting and we thoroughly enjoyed them.

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I couldn’t wait to share them with you! I adore the art style used – the details and whimsy encourage you to take your time on each page.

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Man in the Moon – If you ever wondered where the man in the moon came from, this is his origin story. He used to be a child, just like you! But a battle strands him on the moon, without his parents or his faithful guardian, Nightlight.  Eventually, a quest sends him on to being the first guardian of childhood.

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The Sandman-  When the Man in the Moon realizes that he needs someone to help watch over the children when the moon is hidden, he chooses Sanderson Mansnoozie to keep the nightmares away from the children. But Sanderson has never had a nightmare, how can Man in Moon convince him how important this is to every child’s happy-being?

“I will watch over the children of the earth,Guide them safely from ways of harm, Keep happy their hearts, brave their souls, and rosy their cheeks. I will guard with my life their hopes and dreams, For they are all that I have, all that I am, and all that I will ever be.”

~Guardians oath~

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Jack Frost – After protecting Man in Moon, Nightlight was thrown to earth, stuck in time as a boy. He wanders the world, spreading his freeze everywhere where he earns the name Jack Overland Frost. Then, one day, Man in Moon shows him that bringing cheer to kids brings warmth to him as well.  And when he realizes that there will always be children that need a snow day, he knows he should be one of the Guardians of Childhood.

 

If you’re looking for an enchanting children’s series, I highly recommend you check these out. Also, a movie was based off of this series and it is one of my favorite animated films – Rise of the Guardians. Check out the trailer!

Character Creation – Ian

22 Aug

Once again I’m using this character development sheet , she has many other free printables to help you get your story idea off the ground.

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Today I’m filling in more characteristics of Ian Greenwahl, a minor character in my first novel. I have fallen in love with Ian as I’ve written him so I’m excited to add some depth to him.

Ian Greenwahl – American – mid 20’s  – oldest of two children, one sister – inherited the estate from his late father

Optimist or Pessimist – Why?  – A quiet/hesitant optimist. 

Introvert or extrovert. Why?  – Introvert. Prefers to be at home reading or volunteering at the orphanage.

Drives and motivations : wants to take proper care of the estate his father passed to him; wants to improve the lives of orphans.

Talents:

Extremely skilled at : putting people at ease – including children, 

Extremely unskilled at : flirting , shameless flattery

Good characteristics : steady, good listener, honourable, always ready to help, honest

Character flaws : a bit of a perfectionist, finds it hard to forgive certain flaws in others (list!), takes him a while to trust, can be too honest at times

Mannerisms : upright stance, uses facial expressions to get his point across

Peculiarities: doesn’t enjoy large gatherings (bad for a man of his social standing),

Biggest regret: something to do with his father? both his parents? an orphan?

Minor regrets:

Biggest accomplishments:  the building of a new orphanage? 

Minor accomplishments: didn’t he row in college? or how about mastered fencing?

Character’s darkest secret: does he feel responsible for parents’ deaths?

Does anyone else know? no

If  yes, did character tell them?

If no, how did they find out?

 

Have you been working on a project lately? 

~Laura

Series Review: Mistborn Trilogy

17 Aug

 

It’s FINALLY here you guys! I’m finally reviewing this trilogy by Brandon Sanderson. He is the author of one of my favorite novels – Elantris. So I was interested to read some of his other work. This series really had mixed reviews so I wasn’t that keen on just buying it but my library didn’t have the first one. I eventually broke down and bought Mistborn (book #1) at Powell’s because I couldn’t take it anymore. Thankfully the library has the other two books.

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Photo by Edgar Guerra on Unsplash

The sci-fi fantasy genre is relatively new to me. Because of that, I didn’t know what to expect in regards to – well, anything. I was most concerned about the sexual content that might be included but I ended up being pleasantly surprised. ( I feel the need to add that when I read any new book that’s not a faith-based author, I worry about this.)  There were a few innuendos in each of the last two but were mild enough that I didn’t feel the need to put down the book.

(I’ve shared the only pics I have of each book. Apparently I never took cover pics of them. I decided to go ahead and share them because they show just how BIG/long they all are! If I remember right, they average 700 pages each) 

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Mistborn – It took a thousand years for even the memory of hope to die, but the Lord Ruler dominates his world with a violent and dominating fist. Ash falls from the sky and mists rule the night. Kelsier, a mistborn, gathers his crew for the greatest heist in history. By chance, he runs into street-smart and wary Vin, a mistborn as well. For their plan to work, Vin must learn to use her powers as well as trust those around her. They are all in for a surprise when Kelsier tells him the other part of his plan – kill the Lord Ruler.

~Was thoroughly surprised and delighted to find myself drawn into this story as quickly as I was with Elantris.  The characters are interesting and varied and the world Sanderson creates – while hard to imagine with ash falling daily from the sky and the whole world a neutral gray – comes alive. The villain is terrible, although there’s enough mystery that keeps him from being trite. The ending was unexpected and I had a hard time waiting for the next two books from the library.

 

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The Well of Ascension – With the Lord Ruler, the man who claimed to be god incarnate, dead, the world is left in the hands of Vin  and the aristocratic man that she’s fallen in love with. Kelsier’s crew is left trying to learn politics, while a new religion among the people – based around Vin and Kelsier – is growing.  Stopping assassins from killing the new ruler soon proves to be the least of Vin’s problems – the mists now have a strange quality about them. As if they are against her. As Luthadel is beseiged, a legend comes to light. While it seems to offer hope, no one is quite sure what to do about it. Where is the Well of Ascension? And what power does it really hold?

 

~I wasn’t sure what to expect at the start of this book, what with the ending of the first one. The story had me so in its grip though, that I couldn’t wait to delve back into it. The individual characters’ growth were interesting – Sazed, Elend, Vin, Spook, etc, and how they each searched for their role in this new government, this new world. I think Sazed started to shine in this one, becoming the one that I most… identified with. The ending, if I remember correctly, was slightly dissatisfying and didn’t tie up as many loose ends as I thought it would. 

 

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Hero Of Ages – When the Lord Ruler was killed, the Deepness was released back into the world. Creating all sorts of havoc that Vin, Elend and the others fighting to save the world can’t stop – the ash is falling heavier than ever, the mists are killing people and earthquakes are increasing in strength. It seems that humanity is doomed.

~ This book. Where do I even start? This book concludes everything that you’ve been wondering if he’s ever going to tie up – and more that you hadn’t even realized were left dangling. Sanderson is an amazing storyteller, going against the grain of  what you expect to happen and pulling the rug out from under you. And then you go ‘aha! (waking up your significant other in the middle of the night) because you just got what he’s been alluding to. And then later realizing that perhaps you didn’t have it figured out. The turn-about that he does with the Lord Ruler was a brilliant move on Sanderson’s part. I’d say I was slightly heartbroken but also pleased with its ending.

 

I have to point out that it’s really hard to write synopsis’ without giving any major details of the plot away. If you look these up anywhere online you’ll learn a whole lot more about them but I hate it when I learn a pivotal plot line before I should! So, it’s up to you if you want to know more about them or not.

This series is one that will probably be a yearly-read for me. Meaning that I’ll eventually just buy the next two books! If you enjoy this genre, I recommend that you give it a shot. It sucks you in quick and takes you through every possible emotion – a sign of a good story. I will add that I didn’t end up loving it in the same way as Elantris, but perhaps that’s because this series breaks your heart more often. heh.

Because of the subtle innuendos that are sparsely included, I wouldn’t recommend this for a younger audience.

(Yes, I took these to read while getting my IV’s. The rather huge size of them made them easier to handle while one arm was immobilized. )

~While covering different genres, I do not read anything that has blatant sexual content. I will tell you if there is any sort of such (typically very mild and delicately put) in them and if I don’t think they’d be appropriate for young/teenage readers.~

Have you read any of Brandon Sanderson? What genre have you recently tried, or have been wanting to try?

~Laura

Health Update : July/Aug 2017

15 Aug

It’s interesting to go through the past few health updates each time I write a new one to see how I’ve progressed/regressed. It is so easy to just see the mountain you’re climbing that you forget how far you’ve already climbed! The struggle with this battle is that there’s dips and valleys and straight-up peaks that I’ve got to get through and over. Some days I don’t feel up for the challenge but right now, I’m ready for it. I will one day be healthy enough to have the homestead I dream of. I will.

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Overall Health: I have had some LOW lows and some pretty good highs this past four weeks. But, the lows don’t seem to be lasting quite as long as they used to. I even have gotten out for some fun a few weekends.

Notes: 7-7 teeth are aching. migraine. Fatigue all day. Need to take a bath but it’s just too much. Fibropain is kicking up late in evening
7-8 fibropain is in arms, not severe just.. There. Migraine trying to kick in. Tired but can’t sleep
7-9 fatigue and migraine all day. fibromyalgia flaring bad this evening can’t sleep
7-13 fatigue not quite as intense. Fibropain flared in left hand and in calves. Migraine came in evening. 
7-18 slight pain over heart. Fatigue. Migraine trying to kick up -able to be out and about for @6hrs. Back and feet hurt after
7-19 started liver ‘pill’ trial. Went out for a few hrs, migraine kicking up early afternoon. Fatigue and migraine even after 2hr nap. 
7-21 woke up with bad fatigue and migraine. Had to stay home all day. Took two naps, over an HR each, didn’t help with fatigue. Going to bed with level 8 migraine and exhausted. Some fibropain today too. Days away from monthly
7-23 (yesterday i felt pretty good) migraine, nausea and fatigue today. Took a 2 hr nap. Woke up dehydrated, as usual. Brain foggy. 
7-24 afternoon/evening severe (level 9?) migraine. Fibropain flared but not severe. 
7-26 level 10 migraine. Vision was funny off and on all day. Got sparkles in left eye around 4pm. 
7-27 starting fibronol again
8-1 IV today. Woke up shaky, weak and migraine. Severe migraine in evening
8-2 woke up with migraine. Got it calmed enough to sand chair for half an hour
8-3 upped fibronol to 2a day
8-5 another vision loss migraine. Pain didn’t stay severe as long. Nausea. (had gone to see movie in a theatre)
8-7 started Lightning Pearls. Felt pretty good today, migraine kicked up early aft.

8-12/13 felt good overall. so days 21/22 of cycle. still took a few clonidine each day

8-14 worked out for half an hr. upped lighting pearls to 2 a day.

We added glutathione to the end of my IV this last time. The IV’s help so much in reducing my symptoms that I’m excited to add more helps to them.

Sleep: I ran out of Theanine so I was taking melatonin almost every night to help me get to sleep and boy, oh boy, that’s never a good idea. I finally figured that even with how poorly I sleep on my own, at least I wouldn’t be having the nightmares that regular melatonin brings. Thankfully my new bottle of Theanine arrived the other day

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my ‘you don’t always have to be thankful it’s not worse’ face

Memory/Disassociation : These are both unchanged I believe. Although this past Sunday we were out and about all morning and I did very well.

Vision: Along with getting level 10 migraines more frequently, my vision has been ….funky. When those severe ones hit, I’ll lose the sight in my left eye. Thankfully, we have figured out the treatment to get the pain down quickly (or even avoid the severity altogether) as I used to lose sight for half an hr. And then the pain would swoop in about 20 minutes later and last HOURS. So I’m glad we’ve figured out part of it. But now I’m noticing just… irregularities with my sight sometimes. Trying to read – computer or printed page – can be nauseating and the light/words seem to move.

Dizziness:  This has only been present a few times

Fibromyalgia: While I will feel discomfort/tenseness in my calves and writsts/arms, and occasionally shooting pains, the drive-me-insane levels haven’t come back this month. I am curious if this is the fibronol doing its thing. Ice and advil and heat are still my friends for this

Fatigue: This has been back and forth. It will knock me out flat for days at a time and then be on the back burner. I’ve noticed that sometimes getting up and doing something for a few minutes helps ease it

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I now need this shirt

Weight Loss: I haven’t been as consistently strict on my eating this past four weeks which means I haven’t done as well at losing weight.

Mood: Still no major mood swings but it’s still been a struggle. Getting frustrated easily, or just having negative thoughts a lot would throw me all off balance. It has been better the past several days though

Bladder: This had been marginally better but not anymore.

~In an effort to focus on the things that I can do, here’s a few things that I’m currently thankful for : I’m able to make dinner almost every night. I’m now able to drive myself to my doctor appointments. I’m also able to run errands on my own. My attention span has been a little bit better.

~On the flip side, little irritants : the floaters in my eyes lately are driving me crazy. my hands instinctively curl up/tense, which hurts. If I sleep at all without my night guard, I pay for it. severely.

I feel like we’ve made a few strides forward this month and I’m just praying it continues

How have you been this month? 

~Laura

 

 

 

Encouragement for living with Chronic Pain Part 4

10 Aug

Hello friends! I hope you’re having a wonderful day. I’ve been sharing a series of posts filled with articles on living with – and being a supporter and encourager  of someone with – chronic pain.

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Facebook posts we all want to share but don’t  by themighty.com

 

Why is Pacing Important? by My Eds Journey

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How Chronic Illness makes you awesome by Chronic Mom

Coping Skills to Manage the Emotional Stress by Life in Slow Motion

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Facing Suffering that lasts longer than a Season by Life in Slow Motion

Symptoms of my Lyme Disease by SGL

psalmsonethree

~Laura

Do you have any encouraging posts to share? 

Series Review: Seasons of the Heart

8 Aug

I’m sure you know by now that I enjoy Janette Oke’s novels – Roses for Mama   being one of my favorites. Recently I was wanting a light read (I believe it was while I was in the midst of Hero of Ages – yes, that review is coming next week!) and pulled the first of this series off the shelf. I don’t remember the last time I read this series although I’m guessing it’s been more than five years.

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Janette Oke changed up her normal style with this series. It’s written in first person – and the main character is a young boy. Joshua Jones has been raised by his Aunt Lou, Grandpa and Uncle Charlie. The series follows his growing up – in faith, age and love – as times change and they live through the Great Depression. Each book is absolutely delightful. The situations make you alternately laugh out loud, sniff a little and sigh happily.

By the end of the series, I want to stay up late with Grandpa and Uncle Charlie while they drink coffee, go fishing with Gramps, go on a sleigh ride and sit and sip tea with Aunt Lou.

 

Check out the books on Goodreads

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My collection of Oke’s books

I believe I first read this series as a young teen – possibly even a pre-teen – so can definitely recommend them for younger readers as well! Oke fills her books with good theology and I am always convicted about how I am living out my own faith, when I read her stories. This series is a must read!

~Tip : If you like Lori Wick or Beverly Lewis, you’ll like Janette Oke!

~I was searching through past book reviews in the midst of writing this one (score one for me for getting distracted!) when I skimmed through this review and knew I had to share it again! I have actually been wanting to read several of these books again too. 

~While covering different genres, I do not read anything that has blatant sexual content. I will tell you if there is any sort of such (typically very mild and delicately put) in them and if I don’t think they’d be appropriate for young/teenage readers.

Happy Reading, Laura

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